Variable expressivity of the autosomal dominant vitreoretinochoroidopathy (ADVIRC) phenotype associated with a novel variant in BEST1

Ophthalmic Genet. 2024 Oct;45(5):470-475. doi: 10.1080/13816810.2024.2368797. Epub 2024 Jul 3.

Abstract

Background: This case report explores the relationship between genetics and phenotypic variability in autosomal dominant vitreoretinochoroidopathy (ADVIRC). The study focuses on a case presenting a novel mutation in the BEST1 gene and its phenotype in the case's relatives, shedding light on the structural and functional intricacies underlying this rare ophthalmologic disorder.

Case presentation: A 33-year-old female presented for consultation with a history of bilateral retinal damage accompanied by a complaint of decreased visual acuity, progressive visual field deficit, and night blindness over the past year. Ophthalmic examination revealed a distinctive phenotype, including fibrillar vitreous, pigmented cells, and atrophic hyperpigmented retina in the periphery which was suggestive of a diagnosis of ADVIRC. Genetic testing revealed a heterozygous c.1101-1 G>T variant in BEST1, a novel splice site mutation. Functional analysis confirmed its impact on pre-mRNA splicing, resulting in an in-frame deletion (p(Ser367_Asn579del)). Family investigation revealed varying degrees of ophthalmologic impairment in the patient's mother and half-sister, both carrying the same mutation.

Conclusions: This case report provides the first clinical description of the c.1101-1 G>T mutation in the BEST1 gene associated with ADVIRC. The presence of intrafamilial variability, as evidenced by the differing clinical features observed in the index case and her half-sister, suggests the potential involvement of mechanisms influencing phenotype expression.Abbreviation: ADVIRC : autosomal dominant vitreoretinochoroidopathy; RNA : ribonucleic acid; RPE : retinal pigment epithelium.

Keywords: ADVIRC; BEST1; case report; genotype-phenotype correlation.

Publication types

  • Case Reports

MeSH terms

  • Adult
  • Bestrophins* / genetics
  • Chloride Channels* / genetics
  • Choroid Diseases* / diagnosis
  • Choroid Diseases* / genetics
  • Eye Diseases, Hereditary* / diagnosis
  • Eye Diseases, Hereditary* / genetics
  • Eye Proteins* / genetics
  • Female
  • Fluorescein Angiography
  • Genes, Dominant
  • Humans
  • Mutation
  • Pedigree*
  • Phenotype*
  • Retinal Degeneration
  • Retinal Diseases / diagnosis
  • Retinal Diseases / genetics
  • Retinal Diseases / pathology
  • Tomography, Optical Coherence
  • Visual Acuity* / physiology
  • Visual Fields / physiology

Substances

  • Bestrophins
  • BEST1 protein, human
  • Eye Proteins
  • Chloride Channels

Supplementary concepts

  • Vitreoretinochoroidopathy