Storytelling to support legacy making for bereaved parents of children with cancer

Pediatr Blood Cancer. 2024 Nov;71(11):e31272. doi: 10.1002/pbc.31272. Epub 2024 Aug 13.

Abstract

Honoring a child's legacy is an essential aspect of meaning-making for bereaved parents, yet little is known about storytelling as a mechanism. Through narrative analysis of 19 bereaved parent interviews focused on legacy, we examined the role of storytelling in creating and sustaining legacy. Most participants (89%) told stories centered around the child's impact and parent's coping, including the child's character and interpersonal relationships during and after their lifetime as well as how the child's legacy influenced parents' grief experiences. Future research is needed to explore the potential impact of storytelling initiatives to support legacy-making for bereaved caregivers.

Keywords: Bereaved parents; children with cancer; legacy; pediatric oncology; pediatric palliative care; storytelling.

MeSH terms

  • Adaptation, Psychological*
  • Adolescent
  • Adult
  • Bereavement*
  • Child
  • Child, Preschool
  • Female
  • Humans
  • Male
  • Middle Aged
  • Narration
  • Neoplasms* / psychology
  • Parents* / psychology