Pediatric Huntington Disease Brains Have Distinct Morphologic and Metabolic Traits: the RAREST-JHD Study

Mov Disord Clin Pract. 2024 Dec;11(12):1592-1597. doi: 10.1002/mdc3.14223. Epub 2024 Oct 5.

Abstract

Background: Pediatric-onset Huntington's disease (POHD) exhibits a phenotype different from adult-onset HD (AOHD), with hypokinetic movement disorders (eg, rigidity, bradykinesia, and dystonia) rather than chorea typical of AOHD.

Objectives: The aim was to identify pathophysiology-based biomarkers specific to POHD (≥60 CAG repeats).

Methods: Simultaneous hybrid imaging using [18F]fluoro-2-deoxy-d-glucose (FDG) positron emission tomography plus magnetic resonance imaging (FDG-PET/MRI) and clinical assessment using standardized Huntington's disease (HD) scales were employed. Exploratory longitudinal analyses were also performed.

Results: Striatal volume loss was remarkable and more severe in POHD (n = 5) than in AOHD (n = 14). Widespread, significantly altered glucose metabolism occurred in several different POHD cortical areas and thalamus, but not AOHD cortex, consistent with differences in clinical progression.

Conclusions: POHD patients' brains exhibited distinct morphologic and metabolic traits compared to AOHD patients' brains, with longitudinal changes mirroring clinical progression. Hybrid FDG-PET/MRI highlighted a variable regional brain dysfunction in vivo, as a biological consequence of highly expanded CAG repeats. Findings provide further evidence that POHD is a distinct disease from AOHD.

Keywords: glucose metabolism; magnetic resonance imaging (MRI); pediatric‐onset Huntington's disease; positron emission tomography (PET); simultaneous imaging; striatal volume.

MeSH terms

  • Adolescent
  • Brain* / diagnostic imaging
  • Brain* / metabolism
  • Brain* / pathology
  • Child
  • Disease Progression
  • Female
  • Fluorodeoxyglucose F18
  • Humans
  • Huntington Disease* / diagnosis
  • Huntington Disease* / diagnostic imaging
  • Huntington Disease* / genetics
  • Huntington Disease* / metabolism
  • Huntington Disease* / pathology
  • Longitudinal Studies
  • Magnetic Resonance Imaging*
  • Male
  • Positron-Emission Tomography*
  • Young Adult

Substances

  • Fluorodeoxyglucose F18