Discussing methodological gaps in psychosocial intervention research for dementia: an opinion article from the INTERDEM Methodology Taskforce guided by the MRC framework

Sara Laureen Bartels; Nathan Stephens; Federica D'Andrea; Melanie Handley; Marine Markaryan; Andrea Nakakawa Bernal; Lieve Van den Block; Simone R de Bruin; Karen Windle; Martina Roes; Niels Janssen; Hannah Christie; Lesley Garcia; Gwen Teesing; Esme Moniz-Cook; Maud Graff

doi:10.3389/frdem.2024.1458023

Discussing methodological gaps in psychosocial intervention research for dementia: an opinion article from the INTERDEM Methodology Taskforce guided by the MRC framework

Front Dement. 2024 Sep 26:3:1458023. doi: 10.3389/frdem.2024.1458023. eCollection 2024.

Authors

Sara Laureen Bartels^#¹, Nathan Stephens^#², Federica D'Andrea^#³, Melanie Handley⁴, Marine Markaryan¹, Andrea Nakakawa Bernal⁵, Lieve Van den Block⁶, Simone R de Bruin⁷, Karen Windle⁸, Martina Roes^{9

10}, Niels Janssen¹, Hannah Christie^{1

11}, Lesley Garcia¹², Gwen Teesing¹³, Esme Moniz-Cook¹⁴, Maud Graff^{15

16}

Affiliations

¹ Department of Psychiatry and Neuropsychology and Alzheimer Centrum Limburg, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, Netherlands.
² The Association for Dementia Studies, School of Allied Health and Community, University of Worcester, Worcester, United Kingdom.
³ The Geller Institute of Ageing and Memory, School of Medicine and Biosciences, University of West London, London, United Kingdom.
⁴ Centre for Research in Public Health and Community Care, University of Hertfordshire, Hatfield, United Kingdom.
⁵ Design Department, Politecnico di Milano, Milan, Italy.
⁶ VUB-UGent End-of-Life Care Research Group, Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel, Brussels, Belgium.
⁷ Research Group Living Well with Dementia, Division Health and Social Care, Windesheim University of Applied Sciences, Zwolle, Netherlands.
⁸ Centre for Applied Dementia Studies, University of Bradford, Bradford, United Kingdom.
⁹ German Center for Neurodegenerative Diseases (DZNE), Witten, Germany.
¹⁰ Faculty of Health, Department of Nursing Science, University of Witten/Herdecke, Witten, Germany.
¹¹ School of Population Health, Royal College of Surgeons in Ireland, Dublin, Ireland.
¹² School of Sociology and Social Policy, University of Nottingham, Nottingham, United Kingdom.
¹³ Alzheimer Nederland, Amersfoort, Netherlands.
¹⁴ Faculty of Health Sciences, University of Hull, Hull, United Kingdom.
¹⁵ Department of Rehabilitation, Radboudumc, Radboud University Medical Centre Nijmegen, Nijmegen, Netherlands.
¹⁶ Department of IQ Health, Radboudumc Alzheimer Center, Radboud University Medical Center Nijmegen, Nijmegen, Netherlands.

^# Contributed equally.

No abstract available

Keywords: complexity; context; dementia care; methodology; psychosocial intervention; public involvement; support; theory-driven.

Grants and funding

The author(s) declare financial support was received for the research, authorship, and/or publication of this article. This work was supported by the Alzheimer's Association, Advancing Research on Care and Outcome Measurement (ARCOM) programme under the grant number ARCOM-24-1250087 awarded to MG, and executed in collaboration with SLB and FD'A. The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the Alzheimer's Association. Funding details of the studies cited in this work are listed below: the HOMEDEM network received funding from European Union's EU Framework Programme for Research and Innovation Europe Horizon Europe (HORIZON) Marie Skłodowska-Curie Actions Doctoral Networks (MSCA-DN) under the grant agreement 101072827. The CONNECT study was funded by Alzheimer's Society (UK) under the grant number 516 AS-PG-19a-010.