Experiences of men with non-cancer related lymphoedema UK-based online survey. Part two: findings and discussion

Br J Community Nurs. 2024 Oct 1;29(Sup10):S10-S18. doi: 10.12968/bjcn.2024.0012.

Abstract

This article is the second instalment in the series. The preceding article detailed the background, methodology and methods, while the current article delves into the study's findings and alignment with the broader literature. The study aimed to explore the research question: 'how do men perceive their engagement in the self-management of non-cancer-related lymphoedema?' Upon completing an online survey based on the validated lymphoedema quality of life tool (LYMQoL), the gathered data underwent narrative thematic analysis. Three themes emerged: Theme 1 explored the strategies men use to address the psychological impact of self-care, including physical concealment. Theme 2 focused on the use of physical control as a method for managing perceived vulnerability. Theme 3 centred on relationships within self-care. The findings shed light on the intricate nature of self-care in the context of lymphoedema and its impact on masculinity. These insights resonate with existing literature, emphasising the use of available resources driven by the perceived vulnerability men experience in their lives.

Keywords: concealment; control; disruption; renegotiation; vulnerability.

MeSH terms

  • Adult
  • Aged
  • Humans
  • Internet
  • Lymphedema* / psychology
  • Male
  • Middle Aged
  • Quality of Life*
  • Self Care*
  • Surveys and Questionnaires
  • United Kingdom