Gaps in biomedical research in frontotemporal dementia: A call for diversity and disparities focused research

Affiliations

• ¹ John P. Hussman Institute for Human Genomics, University of Miami, Miller School of Medicine, Miami, Florida, USA.
• ² Dr. John T. Macdonald Department of Human Genetics, University of Miami, Miller School of Medicine, Miami, Florida, USA.
• ³ Department of Neurology and Alzheimer Center, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
• ⁴ Department of Neurosciences, University of California San Diego, La Jolla, California, USA.
• ⁵ Memory and Aging Center, Department of Neurology, Weill Institute for Neurosciences, University of California, San Francisco, San Francisco, California, USA.
• ⁶ Behavioral and Cognitive Neurology Unit, Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte, Minas Gerais, Brazil.
• ⁷ Manipal Hospitals, Bangalore and Annasawmy Mudaliar Hospital, Bangalore, India.
• ⁸ Manipal Academy of Higher Education (MAHE), Manipal, Karnataka, India.
• ⁹ Parkwood Institute Research, London, London, Ontario, Canada.
• ¹⁰ Robarts Research Institute, University of Western Ontario, London, Ontario, Canada.
• ¹¹ Department of Clinical Neurological Sciences, Schulich School of Medicine and Dentistry, University of Western Ontario, London, Ontario, Canada.
• ¹² IMPACT-The Institute for Mental and Physical Health and Clinical Translation, School of Medicine, Deakin University, Waurn Ponds, Victoria, Australia.
• ¹³ Macquarie Medical school, Faculty of Medicine, Health and Human Sciences, Macquarie University, Macquarie Park, New South Wales, Australia.
• ¹⁴ Sant Pau Memory Unit, Department of Neurology, Hospital de la Santa Creu i Sant Pau, Biomedical Research Institute Sant Pau, Universitat Autònoma de Barcelona, Barcelona, Spain.
• ¹⁵ Centro de Investigación en Red-Enfermedades Neurodegenerativas (CIBERNED), Monforte de Lemos, Madrid, Spain.
• ¹⁶ Neuropsychiatry, Royal Melbourne Hospital, Parkville, Victoria, Australia.
• ¹⁷ Department of Psychiatry, University of Melbourne, Parkville, Victoria, Australia.
• ¹⁸ Mesulam Center for Cognitive Neurology and Alzheimer's Disease and Department of Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
• ¹⁹ Alzheimer Center Amsterdam, Neurology, Vrije Universiteit Amsterdam, Amsterdam UMC location VUmc, Amsterdam, North Holland, The Netherlands.
• ²⁰ Amsterdam Neuroscience, Neurodegeneration, Amsterdam UMC, Amsterdam, North Holland, The Netherlands.
• ²¹ Department of Neurology and Penn Frontotemporal Degeneration Center, University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, USA.
• ²² Oak Street Health - North City, St. Louis, Missouri, USA.
• ²³ Department of Radiology and Biomedical Imaging, University of California, San Francisco, San Francisco, California, USA.
• ²⁴ Grupo de Neurociencias de Antioquia, Universidad de Antioquia, Medellín, Antioquia, Colombia.
• ²⁵ Neuroscience Research institute and Molecular, Cellular and Developmental Biology Department, University of California, Santa Barbara, Santa Barbara, California, USA.
• ²⁶ Neuroscience and Ageing Research Unit, Institute for Advanced Medical Research and Training, College of Medicine, University of Ibadan, Ibadan, Oyo, Nigeria.
• ²⁷ Department of Neurology, National Institute of Mental Health and Neurosciences (NIMHANS), Bangalore, India.
• ²⁸ Department of Neurology, CHS, Addis Ababa University, Addis Ababa, Ethiopia.
• ²⁹ Institute of Neurological Sciences and Psychiatry, Hacettepe University, Sıhhiye/Altindag, Ankara, Turkey.
• ³⁰ Faculty of Medicine, Department of Psychiatry, Hacettepe University, Sıhhiye/Altindag, Ankara, Turkey.
• ³¹ Laboratoire Mémoire Cerveau et Cognition (UR 7536), Institut de Psychologie, Université Paris Cité, Boulogne-Billancourt, France.
• ³² CBI en Demencias y Enfermedades Desmielinizantes del Sistema Nervioso, Instituto Nacional de Ciencias Neurológicas, Lima, Peru.
• ³³ Global Brain Health Institute, University of California, San Francisco, San Francisco, California, USA.
• ³⁴ Department of Internal Medicine, Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.
• ³⁵ The Association for Frontotemporal Degeneration, King of Prussia, Pennsylvania, USA.
• ³⁶ Brain & Mind Centre and the School of Psychology, The University of Sydney, Camperdown, New South Wales, Australia.
• ³⁷ Speech, Language and Hearing Sciences, The University of Texas at Austin, Austin, Texas, USA.
• ³⁸ Depts. of Neurology and Psychiatry, Knight Alzheimer Disease Research Center, Washington University School of Medicine, Saint Louis, Missouri, USA.
• ³⁹ Department of Psychiatry and Behavioral Sciences, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
• ⁴⁰ Department of Neurology, Hospital Clinico San Carlos, San Carlos Institute for Health Research (IdiSSC), Universidad Complutense, Madrid, Spain.
• ⁴¹ Danish Dementia Research Center, Copenhagen University Hospital, Rigshospitalet, and Department of Phychology, University of Copenhagen, Copenhagen, Denmark.
• ⁴² Department of Cell Biology and Genetics, University of Lagos, Tafawa Balewa, Lagos, Nigeria.
• ⁴³ Waisman Center, and Department of Comparative Biosciences, University of Wisconsin-Madison, Madison, Wisconsin, USA.
• ⁴⁴ National Institute of Neurology and Neurosurgery, Mexico City, Mexico.
• ⁴⁵ Department of Anatomy and Medical Imaging, University of Auckland, Auckland, New Zealand.
• ⁴⁶ Department of Neurology, Ghent University Hospital, Ghent, Belgium.
• ⁴⁷ Geroscience Center for Brain Health and Metabolism (GERO), Ñuñoa Santiago, Santiago, Chile.
• ⁴⁸ Neuropsychology and Clinical Neuroscience Laboratory (LANNEC), Physiopathology Department - Institute of Biomedical Sciences (ICBM), Neurocience and East Neuroscience Departments, Faculty of Medicine, University of Chile, Independencia, Santiago, Chile.
• ⁴⁹ Memory and Neuropsychiatric Center (CMYN), Memory Unit, Neurology Department, Hospital del Salvador and Faculty of Medicine, University of Chile, Providencia, Santiago, Chile.
• ⁵⁰ Neurology and Psychiatry Department, Clínica Alemana-Universidad Desarrollo, Santiago, Chile.
• ⁵¹ Dementia Research Centre, UCL Queen Square Institute of Neurology, University College London, London, UK.
• ⁵² Dyslexia Center, Department of Neurology, University of California, San Francisco, San Francisco, California, USA.
• ⁵³ Department of Neurology, Washington University in St. Louis, St. Louis, Missouri, USA.
• ⁵⁴ Institute of Public Health, Washington University in St. Louis, St. Louis, Missouri, USA.
• ⁵⁵ Department of Psychology, Faculty of Humanities, University of Johannesburg, Johannesburg, South Africa.
• ⁵⁶ Department of Clinical Research and Leadership, The George Washington University School of Medicine and Health Sciences, Washington DC, USA.