Evaluation of participation in a former rehabilitation population: a comparison between USER-Participation Restriction and Satisfaction subscales and PROMIS Ability to Participate and PROMIS Satisfaction with participation 8-item short forms in a cross-sectional multicentre study

B M P Mourits; E W M Scholten; J A de Graaf; T I Mol; C A M van Bennekom; R J E M Smeets; M F Reneman; L D Roorda; J M A Visser-Meily; M W M Post

doi:10.1080/09638288.2024.2425747

Evaluation of participation in a former rehabilitation population: a comparison between USER-Participation Restriction and Satisfaction subscales and PROMIS Ability to Participate and PROMIS Satisfaction with participation 8-item short forms in a cross-sectional multicentre study

Disabil Rehabil. 2024 Nov 18:1-11. doi: 10.1080/09638288.2024.2425747. Online ahead of print.

Authors

B M P Mourits¹, E W M Scholten¹, J A de Graaf^{1

2}, T I Mol³, C A M van Bennekom^{4

5}, R J E M Smeets^{6

7

8}, M F Reneman⁹, L D Roorda¹⁰, J M A Visser-Meily^{1

2}, M W M Post^{1

11}

Affiliations

¹ Center of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
² Department of Rehabilitation, Physical Therapy Science & Sports, UMC Utrecht Brain Center, University Medical Center Utrecht, The Netherlands.
³ Institute for the Development of Guidelines in Long-Term Care (SKILZ), Utrecht, The Netherlands.
⁴ Heliomare Rehabilitation Center, Research and Development, Wijk aan Zee, Netherlands.
⁵ Amsterdam University Medical Center, School of Public and Occupational Health, University of Amsterdam, Amsterdam, Netherlands.
⁶ CIR Clinics in Revalidatie, Eindhoven, Netherlands.
⁷ Department of Rehabilitation Medicine, Research School CAPHRI, Maastricht University, Maastricht, Netherlands.
⁸ Pain in Motion International Research Group (PiM), Antwerp, Belgium.
⁹ Department of Rehabilitation Medicine, Center for Rehabilitation, University Medical Center Groningen, University of Groningen, Groningen, Netherlands.
¹⁰ Amsterdam Rehabilitation Research Center, Reade, Amsterdam, The Netherlands.
¹¹ Department of Rehabilitation Medicine, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.

PMID: 39552236
DOI: 10.1080/09638288.2024.2425747

Abstract

Background: Several Patient Reported Outcome Measurements (PROMs) can be used to quantify participation in rehabilitation patients, yet there is limited comparative research on their content and psychometric properties to make an informed decision between them.

Objective: To compare the content and several psychometric properties of the Restriction and Satisfaction subscales of the Utrecht Scale for Evaluation of Rehabilitation - Participation (USER-P) with the Patient-Reported Outcomes Measurement Information System Ability to Participate in Social Roles and Activities (PROMIS-APS) and Satisfaction with Social Roles and Activities (PROMIS-SPS) v2.0 8-item short forms.

Methods: A cross-sectional survey among patients who received rehabilitation treatment (N = 563). Coverage of participation domains, distributions, inter-item correlations, internal consistency, construct validity, and discriminative validity were compared between the PROMs.

Results: The USER-P subscales cover more participation domains than the PROMIS short forms. All PROMs demonstrated adequate internal consistency (α > 0.82) and each had >75% of the hypotheses regarding construct validity confirmed.

Conclusions: The internal consistency, construct and discriminative validity were similar between the USER-P subscales and the PROMIS short forms. It appeared that the USER-P offers more broad information about participation on item level and the total scores of PROMIS short forms offer more precise general information regarding participation.

Keywords: Participation; measurement properties; outcome measurement; patient-reported; rehabilitation; validity.

Plain language summary

The Utrecht Scale for Evaluation of Rehabilitation – Participation (USER-P) and the Patient-Reported Outcomes Measurement Information System Ability to Participate in Social Roles and Activities (PROMIS-APS) and Satisfaction with Social Roles and Activities (PROMIS-SPS) short forms can be used to assess participation in patients during rehabilitation treatment.The USER-P seems more suitable for screening problems in participation and to determine appropriate rehabilitation goals.The PROMIS short forms seem more suitable to periodically monitor the social participation level of patients.The purpose in clinical practice determines which PROM should be chosen to assess participation.