Unlocking Engagement: Enhancing Participation in Research With Vulnerable Populations

Laura Rojas-Rozo; Geneviève Arsenault-Lapierre; Diane Dumaresq; Thérèse Trépanier; Paul Lea; Karen Myers Barnett; Denis O'Connor; Rosette Fernandez Loughlin; Kori Miskucza; Mary Beth Wighton; Claire Godard-Sebillotte; Andrea Gruneir; Jean-Baptiste Beuscart; Susan E Bronskill; Nadia Sourial; Eric E Smith; Jennifer Bethell; Isabelle Vedel; COVID ROSA Research Team

doi:10.3389/ijph.2024.1606705

Unlocking Engagement: Enhancing Participation in Research With Vulnerable Populations

Int J Public Health. 2024 Oct 31:69:1606705. doi: 10.3389/ijph.2024.1606705. eCollection 2024.

Authors

Laura Rojas-Rozo¹, Geneviève Arsenault-Lapierre^{1

2

3}, Diane Dumaresq¹, Thérèse Trépanier¹, Paul Lea¹, Karen Myers Barnett¹, Denis O'Connor¹, Rosette Fernandez Loughlin¹, Kori Miskucza¹, Mary Beth Wighton¹, Claire Godard-Sebillotte⁴, Andrea Gruneir⁵, Jean-Baptiste Beuscart⁶, Susan E Bronskill⁷, Nadia Sourial⁸, Eric E Smith⁹, Jennifer Bethell¹⁰, Isabelle Vedel^{1

2}; COVID ROSA Research Team

Collaborators

Affiliations

¹ Department of Family Medicine, Faculty of Medicine and Health Sciences, McGill University, Montreal, Canada.
² Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, QC, Canada.
³ Center for Research and Expertise in Social Gerontology, CIUSSS Centre-Ouest de l'Ile-de-Montréal, Montréal, QC, Canada.
⁴ Department of Medicine Division of Geriatrics, McGill University Health Center, Montreal, QC, Canada.
⁵ Faculty of Medicine and Dentistry, University of Alberta, Edmonton, AB, Canada.
⁶ CHU Lille, ULR 2694 - METRICS: Evaluation des Technologies de Santé et des Pratiques Médicales, Université de Lille, Lille, France.
⁷ Institute for Clinical Evaluative Sciences, Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.
⁸ Department of Health Management, Evaluation and Policy, School of Public Health, University of Montreal, Montreal, QC, Canada.
⁹ Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
¹⁰ KITE Research Institute, Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada.

No abstract available

Keywords: dementia; guide; participatory research; patient engagement; vulnerability.

Grants and funding

The author(s) declare that financial support was received for the research, authorship, and/or publication of this article. The Canadian Institutes of Health Research (CIHR) (VR5-172692) gave financial support for this study. We also received financial support from the Canadian Consortium on Neurodegeneration in Aging (CCNA). The Consortium is funded by a grant from the CIHR and from several other partners. The funding partners had no involvement in the study design; in the collection, analysis, and interpretation of data; in the writing of the report; nor in the decision to submit the article for publication.