A Template Thematic Analysis of Self-Concept and Self-Compassion in People Living With Endometriosis: Analysis of Qualitative Survey Responses

Aims: To explore the influence of endometriosis on an individual's self-concept and the potential applicability of self-compassion in addressing alterations to self-concept.

Design: Qualitative deductive template analysis study.

Methods: Written reflections completed by women (n = 157) with a self-reported diagnosis of endometriosis were reviewed using a deductive template approach to gain an understanding of how people living with endometriosis view themselves in the face of the diagnosis.

Results: Utilising Neff's (2003) definition of self-compassion, a series of themes emerged, with a higher number of reflections noted for each of the negative components of self-compassion (self-judgement, isolation, overidentification). Themes associated with negative changes to self-concept centred around reflections of inadequacy, self-blame, loneliness, withdrawal and avoidance, feeling misunderstood and judged by others, feeling like a burden and emotional suppression and numbing.

Conclusions: Endometriosis influences three core domains of self-concept for the person (personal, social and physical). These findings indicate that the components of self-compassion therapy may be of relevance for healthcare providers in addressing the alterations to self-concept experience by individuals living with endometriosis.

Implications for patient care: This study supports the need for access to timely diagnosis and interdisciplinary care to buffer against the negative consequences for self-concept. Nurses and allied healthcare professionals can use these findings to provide compassion-focused care, with an emphasis on self-kindness, common humanity and mindfulness for individuals with endometriosis.

Impact: This lived experience research highlights the influence of endometriosis on the personal, social and physical components of self-concept, indicating a critical need to address self-concept as part of endometriosis-related treatment. Alterations to self-concept may emphasise negative perpetuating cognitions and reinforce isolation, suppression of personal needs and self-silencing.

Patient or public contribution: No patient or public contribution.