Ownership of genomic data

Intern Med J. 2024 Dec 13. doi: 10.1111/imj.16573. Online ahead of print.

Abstract

This article considers claims to ownership over genomic data and implications for data sharing and research. There are various arguments for vesting ownership in individuals, but little supporting authority. However, policies such as privacy law and informed consent provide alternative methods of protecting individuals. The conclusions highlight the importance of clear channels of communication with patients.

Keywords: consent; genomics; intellectual property; ownership; privacy.