Caregivers and Coping: Well-Being, Depression, and Coping Strategies Among Caregivers of Young Adults With Developmental Disabilities

Am J Intellect Dev Disabil. 2025 Jan 1;130(1):41-62. doi: 10.1352/1944-7558-130.1.41.

Abstract

This 10-year study followed 134 caregivers of young adults with autism and intellectual disabilities, examining the effects of caregivers' coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower well-being and higher depression among caregivers. Caregivers who were Black or mixed-race experienced higher depression than White caregivers. All five coping strategies investigated predicted changes in caregiver well-being and/or depression, with some effects moderated by young adult externalizing behaviors and sociodemographic features. Notably, higher use of positive coping among caregivers of adults with high externalizing behaviors predicted higher caregiver well-being and lower depression. Findings highlight the importance of effective coping strategies for improving caregiver mental health.

Keywords: adulthood; caregivers; caregiving; coping; depression; externalizing; well-being.

MeSH terms

  • Adaptation, Psychological*
  • Adolescent
  • Adult
  • Autistic Disorder / psychology
  • Caregivers* / psychology
  • Coping Skills
  • Depression* / psychology
  • Developmental Disabilities / nursing
  • Developmental Disabilities / psychology
  • Female
  • Humans
  • Intellectual Disability / nursing
  • Intellectual Disability / psychology
  • Male
  • Middle Aged
  • Young Adult