Validation of a Cancer-Focused Information Seeking Experience (ISEE) Scale

Background: Searching for health information is critical for maintaining one's health and reducing risk of disease, including cancer. However, some people are more likely to experience challenges in finding and comprehending health information; therefore, it is important to measure health information-seeking behavior. In order to add to prior research conducted with the scale, this study provides the first formal evaluation of the validity and reliability of the four-item, cancer-focused Information Seeking Experience (ISEE) scale in a cross-sectional, nationally representative health survey of U.S. adults.

Results: Results indicated that the four ISEE scale items were within limits of normality (skew range = -.44-.11; kurtosis range = -1.07 - -.71), exhibited medium to strong pairwise correlations (r's = .54-.72), and indicated a strong internal consistency (Cronbach's α = .85). The scale was unidimensional (CFI = .997, TLI = .992, SRMR = .012), and the scale demonstrated construct validity with known sociodemographic characteristics. As predicted, the ISEE scale had relatively weak relationships with the Patient Health Questionnaire for Depression and Anxiety, Patient-Centered Communication Scale, and the Patient-Reported Outcomes Measurement Information System (PROMIS) Instrumental Support 4a, demonstrating discriminant validity.

Conclusions: Tracking information-seeking experience in the population is critical, especially to inform efforts that ensure individuals have accessible, understandable, and reliable information about cancer. The ISEE scale was found to assess various aspects of cancer information-seeking in a reliable and valid manner and may be used in future surveys to track information support needs of those who seek health and cancer information.