AIDS and cancer registry linkage: measurement and enhancement of registry completeness. The National AIDS/Cancer Match Study Group

Prev Med. 1995 Jul;24(4):375-7. doi: 10.1006/pmed.1995.1061.

Abstract

Background and methods: To measure AIDS registry completeness for Kaposi's sarcoma (KS) and cancer registry completeness for KS and non-Hodgkin's lymphoma (NHL), we linked AIDS and cancer registries at selected health departments.

Results: We found 10,350 people with KS: 1,935 reported only to the AIDS registry, 1,428 reported only to the cancer registry, and 6,987 reported to both. Ninety-three cases of non-HIV-associated KS were expected. For KS, AIDS registry completeness was 84% [6,987/(6,987 + 1,428 - 93)] and cancer registry completeness was 78% [6,987/(6,987 + 1,935)]. Cancer registry completeness for AIDS-related NHL was 76%.

Conclusion: If this linking were conducted nationally, about 5,700 additional cases of AIDS and 10,000 additional cases of AIDS-related cancers would be recorded.

MeSH terms

  • Acquired Immunodeficiency Syndrome / epidemiology*
  • Humans
  • Lymphoma, AIDS-Related / epidemiology*
  • Lymphoma, Non-Hodgkin / epidemiology*
  • Medical Record Linkage*
  • Neoplasms / epidemiology*
  • Registries / standards*
  • Sarcoma, Kaposi / epidemiology*
  • Systems Integration
  • United States / epidemiology