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In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study.
Williams JK, Erwin C, Juhl AR, Mengeling M, Bombard Y, Hayden MR, Quaid K, Shoulson I, Taylor S, Paulsen JS; I-RESPOND-HD Investigators of the Huntington Study Group. Williams JK, et al. Am J Med Genet B Neuropsychiatr Genet. 2010 Sep;153B(6):1150-9. doi: 10.1002/ajmg.b.31080. Am J Med Genet B Neuropsychiatr Genet. 2010. PMID: 20468062 Free PMC article.
Disclosing genetic test results to family members.
Hamilton RJ, Bowers BJ, Williams JK. Hamilton RJ, et al. Among authors: williams jk. J Nurs Scholarsh. 2005;37(1):18-24. doi: 10.1111/j.1547-5069.2005.00007.x. J Nurs Scholarsh. 2005. PMID: 15813582
Experiences of teens living in the shadow of Huntington Disease.
Sparbel KJ, Driessnack M, Williams JK, Schutte DL, Tripp-Reimer T, McGonigal-Kenney M, Jarmon L, Paulsen JS. Sparbel KJ, et al. Among authors: williams jk. J Genet Couns. 2008 Aug;17(4):327-35. doi: 10.1007/s10897-008-9151-6. Epub 2008 Mar 18. J Genet Couns. 2008. PMID: 18347962 Free PMC article.
The emotional experiences of family carers in Huntington disease.
Williams JK, Skirton H, Paulsen JS, Tripp-Reimer T, Jarmon L, McGonigal Kenney M, Birrer E, Hennig BL, Honeyford J. Williams JK, et al. J Adv Nurs. 2009 Apr;65(4):789-98. doi: 10.1111/j.1365-2648.2008.04946.x. Epub 2009 Feb 9. J Adv Nurs. 2009. PMID: 19228233 Free PMC article.
479 results