Richesson R - Search Results

1

Illness perceptions and fatigue in systemic vasculitis.

Grayson PC, Amudala NA, Mcalear CA, Leduc RL, Shereff D, Richesson R, Fraenkel L, Merkel PA. Grayson PC, et al. Among authors: richesson r. Arthritis Care Res (Hoboken). 2013 Nov;65(11):1835-43. doi: 10.1002/acr.22069. Arthritis Care Res (Hoboken). 2013. PMID: 23861259 Free PMC article.

2

Causal attributions about disease onset and relapse in patients with systemic vasculitis.

Grayson PC, Amudala NA, McAlear CA, Leduc RL, Shereff D, Richesson R, Fraenkel L, Merkel PA. Grayson PC, et al. Among authors: richesson r. J Rheumatol. 2014 May;41(5):923-30. doi: 10.3899/jrheum.131096. Epub 2014 Mar 15. J Rheumatol. 2014. PMID: 24634202 Free PMC article.

3

The informational needs of patients with ANCA-associated vasculitis-development of an informational needs questionnaire.

Mooney J, Spalding N, Poland F, Grayson P, Leduc R, McAlear CA, Richesson RL, Shereff D, Merkel PA, Watts RA. Mooney J, et al. Among authors: richesson rl. Rheumatology (Oxford). 2014 Aug;53(8):1414-21. doi: 10.1093/rheumatology/keu026. Epub 2014 Mar 12. Rheumatology (Oxford). 2014. PMID: 24625507 Free PMC article.

4

Standardization of Questions in Rare Disease Registries: The PRISM Library Project.

Richesson RL, Shereff D, Andrews JE. Richesson RL, et al. Interact J Med Res. 2012 Oct 10;1(2):e10. doi: 10.2196/ijmr.2107. Interact J Med Res. 2012. PMID: 23611924 Free PMC article.

5

The Rare Diseases Clinical Research Network Contact Registry update: features and functionality.

Richesson RL, Sutphen R, Shereff D, Krischer JP. Richesson RL, et al. Contemp Clin Trials. 2012 Jul;33(4):647-56. doi: 10.1016/j.cct.2012.02.012. Epub 2012 Mar 2. Contemp Clin Trials. 2012. PMID: 22405970 Free PMC article.

6

[RD] PRISM Library: Patient Registry Item Specifications and Metadata for Rare Diseases.

Richesson R, Shereff D, Andrews J. Richesson R, et al. J Libr Metadata. 2010 Apr 1;10(2-3):119-135. doi: 10.1080/19386389.2010.506385. J Libr Metadata. 2010. PMID: 21057650 Free PMC article.

7

Mexiletine for symptoms and signs of myotonia in nondystrophic myotonia: a randomized controlled trial.

Statland JM, Bundy BN, Wang Y, Rayan DR, Trivedi JR, Sansone VA, Salajegheh MK, Venance SL, Ciafaloni E, Matthews E, Meola G, Herbelin L, Griggs RC, Barohn RJ, Hanna MG; Consortium for Clinical Investigation of Neurologic Channelopathies. Statland JM, et al. JAMA. 2012 Oct 3;308(13):1357-65. doi: 10.1001/jama.2012.12607. JAMA. 2012. PMID: 23032552 Free PMC article. Clinical Trial.

8

Clinical research for rare disease: opportunities, challenges, and solutions.

Griggs RC, Batshaw M, Dunkle M, Gopal-Srivastava R, Kaye E, Krischer J, Nguyen T, Paulus K, Merkel PA; Rare Diseases Clinical Research Network. Griggs RC, et al. Mol Genet Metab. 2009 Jan;96(1):20-6. doi: 10.1016/j.ymgme.2008.10.003. Epub 2008 Nov 13. Mol Genet Metab. 2009. PMID: 19013090 Free PMC article.

9

Use of SNOMED CT to represent clinical research data: a semantic characterization of data items on case report forms in vasculitis research.

Richesson RL, Andrews JE, Krischer JP. Richesson RL, et al. J Am Med Inform Assoc. 2006 Sep-Oct;13(5):536-46. doi: 10.1197/jamia.M2093. Epub 2006 Jun 23. J Am Med Inform Assoc. 2006. PMID: 16799121 Free PMC article.

10

Heterogeneous but "standard" coding systems for adverse events: Issues in achieving interoperability between apples and oranges.

Richesson RL, Fung KW, Krischer JP. Richesson RL, et al. Contemp Clin Trials. 2008 Sep;29(5):635-45. doi: 10.1016/j.cct.2008.02.004. Epub 2008 Mar 5. Contemp Clin Trials. 2008. PMID: 18406213 Free PMC article.

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