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Addressing the ethical challenges in genetic testing and sequencing of children.
Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group. Clayton EW, et al. Am J Bioeth. 2014;14(3):3-9. doi: 10.1080/15265161.2013.879945. Am J Bioeth. 2014. PMID: 24592828 Free PMC article.
Professionally Responsible Disclosure of Genomic Sequencing Results in Pediatric Practice.
McCullough LB, Brothers KB, Chung WK, Joffe S, Koenig BA, Wilfond B, Yu JH; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group. McCullough LB, et al. Among authors: wilfond b. Pediatrics. 2015 Oct;136(4):e974-82. doi: 10.1542/peds.2015-0624. Epub 2015 Sep 14. Pediatrics. 2015. PMID: 26371191 Free PMC article.
Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.
Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kauffman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS; Clinical Sequencing Exploratory Research (CSER) Consortium Informed Consent and Governance Working Group. Yu JH, et al. Among authors: wilfond bs. Per Med. 2019 Jul;16(4):325-333. doi: 10.2217/pme-2018-0076. Epub 2019 Jul 17. Per Med. 2019. PMID: 31313633 Free PMC article.
Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.
Kraft SA, McMullen C, Lindberg NM, Bui D, Shipman K, Anderson K, Joseph G, Duenas DM, Porter KM, Kauffman TL, Koomas A, Ransom CL, Jackson P, Goddard KAB, Wilfond BS, Lee SS. Kraft SA, et al. Among authors: wilfond bs. Genet Med. 2020 Jun;22(6):1094-1101. doi: 10.1038/s41436-020-0763-z. Epub 2020 Feb 24. Genet Med. 2020. PMID: 32089547 Free PMC article.
368 results