Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation

Search Page

Filters

My Custom Filters

Publication date

Text availability

Article attribute

Article type

Additional filters

Article Language

Species

Sex

Age

Other

Search Results

151 results

Filters applied: . Clear all
Results are displayed in a computed author sort order. The Publication Date timeline is not available.
Page 1
Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe.
Cavazza M, Kodra Y, Armeni P, De Santis M, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Taruscio D, Schieppati A, Iskrov G, Péntek M, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G; BURQOL-RD Research Network. Cavazza M, et al. Eur J Health Econ. 2016 Apr;17 Suppl 1:19-29. doi: 10.1007/s10198-016-0782-5. Epub 2016 Apr 2. Eur J Health Econ. 2016. PMID: 27038625
Delphi approach to select rare diseases for a European representative survey. The BURQOL-RD study.
Linertová R, Serrano-Aguilar P, Posada-de-la-Paz M, Hens-Pérez M, Kanavos P, Taruscio D, Schieppati A, Stefanov R, Péntek M, Delgado C, von der Schulenburg JM, Persson U, Chevreul K, Fattore G, Worbes-Cerezo M, Sefton M, López-Bastida J; BURQOL-RD Research Group. Linertová R, et al. Health Policy. 2012 Nov;108(1):19-26. doi: 10.1016/j.healthpol.2012.08.001. Epub 2012 Sep 2. Health Policy. 2012. PMID: 22947412
EUROPLAN: a project to support the development of national plans on rare diseases in Europe.
Taruscio D, Gentile AE, De Santis M, Ferrelli RM, Posada de la Paz M, Hens M, Huizer J, Fregonese L, Stefanov R, Bottarelli V, Weinman A, Le Cam Y, Gavhed D, Mincarone P, Bushby K, Frazzica RG, Donati C, Vittozzi L, Jessop E. Taruscio D, et al. Public Health Genomics. 2013;16(6):278-87. doi: 10.1159/000355932. Epub 2014 Feb 3. Public Health Genomics. 2013. PMID: 24503588
The Quality of Rare Disease Registries: Evaluation and Characterization.
Coi A, Santoro M, Villaverde-Hueso A, Lipucci Di Paola M, Gainotti S, Taruscio D, Posada de la Paz M, Bianchi F. Coi A, et al. Public Health Genomics. 2016;19(2):108-15. doi: 10.1159/000444476. Epub 2016 Mar 22. Public Health Genomics. 2016. PMID: 26998603
Social/economic costs and health-related quality of life in patients with scleroderma in Europe.
López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Kanavos P, Taruscio D, Schieppati A, Iskrov G, Péntek M, Delgado C, von der Schulenburg JM, Persson U, Chevreul K, Fattore G; BURQOL-RD Research Network. López-Bastida J, et al. Eur J Health Econ. 2016 Apr;17 Suppl 1:109-17. doi: 10.1007/s10198-016-0789-y. Epub 2016 Apr 2. Eur J Health Econ. 2016. PMID: 27038626
Social/economic costs and health-related quality of life in patients with Prader-Willi syndrome in Europe.
López-Bastida J, Linertová R, Oliva-Moreno J, Posada-de-la-Paz M, Serrano-Aguilar P, Kanavos P, Taruscio D, Schieppati A, Iskrov G, Baji P, Delgado C, von der Schulenburg JM, Persson U, Chevreul K, Fattore G; BURQOL-RD Research Network. López-Bastida J, et al. Eur J Health Econ. 2016 Apr;17 Suppl 1:99-108. doi: 10.1007/s10198-016-0788-z. Epub 2016 Apr 2. Eur J Health Econ. 2016. PMID: 27038627
151 results