Wilburn J - Search Results

1

Measurement of patient-reported outcomes. 2: Are current measures failing us?

McKenna SP, Heaney A, Wilburn J. McKenna SP, et al. Among authors: wilburn j. J Med Econ. 2019 Jun;22(6):523-530. doi: 10.1080/13696998.2018.1560304. Epub 2019 Jan 8. J Med Econ. 2019. PMID: 30556787 Free article.

2

The patient-reported impact of scars measure: development and validation.

Brown BC, McKenna SP, Solomon M, Wilburn J, McGrouther DA, Bayat A. Brown BC, et al. Among authors: wilburn j. Plast Reconstr Surg. 2010 May;125(5):1439-1449. doi: 10.1097/PRS.0b013e3181d4fd89. Plast Reconstr Surg. 2010. PMID: 20440163

3

Assessing quality of life in Crohn's disease: development and validation of the Crohn's Life Impact Questionnaire (CLIQ).

Wilburn J, McKenna SP, Twiss J, Kemp K, Campbell S. Wilburn J, et al. Qual Life Res. 2015 Sep;24(9):2279-88. doi: 10.1007/s11136-015-0947-1. Epub 2015 Feb 22. Qual Life Res. 2015. PMID: 25702267

4

Patient value: its nature, measurement, and role in real world evidence studies and outcomes-based reimbursement.

McKenna SP, Wilburn J. McKenna SP, et al. Among authors: wilburn j. J Med Econ. 2018 May;21(5):474-480. doi: 10.1080/13696998.2018.1450260. Epub 2018 Mar 23. J Med Econ. 2018. PMID: 29514528 Free article.

5

Measurement of patient-reported outcomes. 1: The search for the Holy Grail.

McKenna SP, Heaney A, Wilburn J, Stenner AJ. McKenna SP, et al. Among authors: wilburn j. J Med Econ. 2019 Jun;22(6):516-522. doi: 10.1080/13696998.2018.1560303. Epub 2019 Jan 5. J Med Econ. 2019. PMID: 30556774 Free article.

6

The development of the PlexiQoL: A patient-reported outcome measure for adults with neurofibromatosis type 1-associated plexiform neurofibromas.

Heaney A, Wilburn J, Rouse M, Langmead S, Blakeley JO, Huson S, McKenna SP. Heaney A, et al. Among authors: wilburn j. Mol Genet Genomic Med. 2020 Dec;8(12):e1530. doi: 10.1002/mgg3.1530. Epub 2020 Oct 21. Mol Genet Genomic Med. 2020. PMID: 33085177 Free PMC article.

7

Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition.

Wilburn J, McKenna SP, Heaney A, Rouse M, Taylor M, Culkin A, Gabe S, Burden S, Lal S. Wilburn J, et al. Clin Nutr. 2018 Jun;37(3):978-983. doi: 10.1016/j.clnu.2017.04.004. Epub 2017 Apr 12. Clin Nutr. 2018. PMID: 28446383

8

The impact of Dupuytren disease on patient activity and quality of life.

Wilburn J, McKenna SP, Perry-Hinsley D, Bayat A. Wilburn J, et al. J Hand Surg Am. 2013 Jun;38(6):1209-14. doi: 10.1016/j.jhsa.2013.03.036. J Hand Surg Am. 2013. PMID: 23707018

9

Impact of lipoatrophy on patient-reported outcomes in antiretroviral-experienced patients.

Doward LC, Dietz B, Wilburn J, McKenna SP, Bhor M, Rajagopalan R. Doward LC, et al. Among authors: wilburn j. AIDS Read. 2008 May;18(5):242-6, 252-6, 262-4. AIDS Read. 2008. PMID: 18589480 Review.

10

Adaptation of the QoL-AGHDA scale for adults with growth hormone deficiency in four Slavic languages.

McKenna SP, Wilburn J, Twiss J, Crawford SR, Hána V, Karbownik-Lewinska M, Popovic V, Pura M, Koltowska-Häggström M. McKenna SP, et al. Among authors: wilburn j. Health Qual Life Outcomes. 2011 Aug 2;9:60. doi: 10.1186/1477-7525-9-60. Health Qual Life Outcomes. 2011. PMID: 21810234 Free PMC article.

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