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Page 1
Standardisation of nailfold capillaroscopy for the assessment of patients with Raynaud's phenomenon and systemic sclerosis.
Smith V, Herrick AL, Ingegnoli F, Damjanov N, De Angelis R, Denton CP, Distler O, Espejo K, Foeldvari I, Frech T, Garro B, Gutierrez M, Gyger G, Hachulla E, Hesselstrand R, Iagnocco A, Kayser C, Melsens K, Müller-Ladner U, Paolino S, Pizzorni C, Radic M, Riccieri V, Snow M, Stevens W, Sulli A, van Laar JM, Vonk MC, Vanhaecke A, Cutolo M; EULAR Study Group on Microcirculation in Rheumatic Diseases and the Scleroderma Clinical Trials Consortium Group on Capillaroscopy. Smith V, et al. Among authors: gyger g. Autoimmun Rev. 2020 Mar;19(3):102458. doi: 10.1016/j.autrev.2020.102458. Epub 2020 Jan 10. Autoimmun Rev. 2020. PMID: 31927087 Free article. Review.
Severe gastrointestinal disease in very early systemic sclerosis is associated with early mortality.
Richard N, Hudson M, Wang M, Gyger G, Proudman S, Stevens W, Nikpour M; Canadian Scleroderma Research Group (CSRG); Australian Scleroderma Interest Group (ASIG); Baron M. Richard N, et al. Among authors: gyger g. Rheumatology (Oxford). 2019 Apr 1;58(4):636-644. doi: 10.1093/rheumatology/key350. Rheumatology (Oxford). 2019. PMID: 30517716 Free PMC article.
Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients.
Thombs BD, Kwakkenbos L, Carrier ME, Bourgeault A, Tao L, Harb S, Gagarine M, Rice D, Bustamante L, Ellis K, Duchek D, Wu Y, Bhandari PM, Neupane D, Carboni-Jiménez A, Henry RS, Krishnan A, Sun Y, Levis B, He C, Turner KA, Benedetti A, Culos-Reed N, El-Baalbaki G, Hebblethwaite S, Bartlett SJ, Dyas L, Patten S, Varga J; Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Patient Advisory Team; SPIN Investigators. Thombs BD, et al. J Psychosom Res. 2020 Aug;135:110132. doi: 10.1016/j.jpsychores.2020.110132. Epub 2020 May 14. J Psychosom Res. 2020. PMID: 32521358 Free PMC article. Clinical Trial.
Reporting items for capillaroscopy in clinical research on musculoskeletal diseases: a systematic review and international Delphi consensus.
Ingegnoli F, Herrick AL, Schioppo T, Bartoli F, Ughi N, Pauling JD, Sulli A, Cutolo M, Smith V; European League against Rheumatism (EULAR) study group on microcirculation in rheumatic diseases and the Scleroderma Clinical Trials Consortium. Ingegnoli F, et al. Rheumatology (Oxford). 2021 Mar 2;60(3):1410-1418. doi: 10.1093/rheumatology/keaa457. Rheumatology (Oxford). 2021. PMID: 32984894
Immunosuppression does not prevent severe gastrointestinal tract involvement in systemic sclerosis.
Richard N, Gyger G, Hoa S, Proudman S, Stevens W, Nikpour M, Wang M, Schnitzer ME, Baron M, Hudson M; Canadian Scleroderma Research Group (CSRG), Australian Scleroderma Interest Group (ASIG). Richard N, et al. Among authors: gyger g. Clin Exp Rheumatol. 2021 Jul-Aug;39 Suppl 131(4):142-148. doi: 10.55563/clinexprheumatol/7683pg. Epub 2021 Jun 9. Clin Exp Rheumatol. 2021. PMID: 34128797 Free article.
The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial.
Nordlund J, Henry RS, Kwakkenbos L, Carrier ME, Levis B, Nielson WR, Bartlett SJ, Dyas L, Tao L, Fedoruk C, Nielsen K, Hudson M, Pope J, Frech T, Gholizadeh S, Johnson SR, Piotrowski P, Jewett LR, Gordon J, Chung L, Bilsker D, Levis AW, Turner KA, Cumin J, Welling J, Fortuné C, Leite C, Gottesman K, Sauve M, Rodríguez-Reyna TS, Larche M, van Breda W, Suarez-Almazor ME, Wurz A, Culos-Reed N, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Nordlund J, et al. Trials. 2021 Nov 27;22(1):856. doi: 10.1186/s13063-021-05827-z. Trials. 2021. PMID: 34838105 Free PMC article.
Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial.
Kwakkenbos L, Carrier ME, Welling J, Levis B, Levis AW, Sauve M, Turner KA, Tao L, Aguila K, Carboni-Jiménez A, Cañedo-Ayala M, Harb S, van den Ende C, Hudson M, van Breda W, Nguyen C, Boutron I, Rannou F, Thombs BD, Mouthon L; SPIN Investigators. Kwakkenbos L, et al. Trials. 2022 Dec 12;23(1):994. doi: 10.1186/s13063-022-06923-4. Trials. 2022. PMID: 36510233 Free PMC article. Clinical Trial.
A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members.
Wurz A, Duchek D, Ellis K, Bansal M, Carrier ME, Tao L, Dyas L, Kwakkenbos L, Levis B, El-Baalbaki G, Rice DB, Wu Y, Henry RS, Bustamante L, Harb S, Hebblethwaite S, Patten SB, Bartlett SJ, Varga J, Mouthon L, Markham S, Thombs BD, Culos-Reed SN; SPIN-CHAT Patient Advisory Team; Program Facilitators; Scleroderma Patient-centered Intervention Network Investigators. Wurz A, et al. Disabil Rehabil. 2024 Feb;46(3):533-545. doi: 10.1080/09638288.2023.2169775. Epub 2023 Jan 28. Disabil Rehabil. 2024. PMID: 36708187
85 results