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Page 1
Recruitment, retention, and adherence in a clinical trial: The Pediatric Heart Network's Marfan Trial experience.
Hamstra MS, Pemberton VL, Dagincourt N, Hollenbeck-Pringle D, Trachtenberg FL, Cnota JF, Atz AM, Cappella E, De Nobele S, Grima J, King M, Korsin R, Lambert LM, MacNeal MK, Markham LW, MacCarrick G, Sylvester DM, Walter P, Xu M, Lacro RV; Pediatric Heart Network Investigators. Hamstra MS, et al. Among authors: hollenbeck pringle d. Clin Trials. 2020 Dec;17(6):684-695. doi: 10.1177/1740774520945988. Epub 2020 Aug 21. Clin Trials. 2020. PMID: 32820647 Free PMC article.
Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome.
Handisides JC, Hollenbeck-Pringle D, Uzark K, Trachtenberg FL, Pemberton VL, Atz TW, Bradley TJ, Cappella E, De Nobele S, Groh GK, Hamstra MS, Korsin R, Levine JC, Lindauer B, Liou A, Neal MKM, Markham LW, Morrison T, Mussatto KA, Olson AK, Pierpont MEM, Pyeritz RE, Radojewski EA, Roman MJ, Xu M, Lacro RV; Pediatric Heart Network Investigators. Handisides JC, et al. Among authors: hollenbeck pringle d. J Pediatr. 2019 Jan;204:250-255.e1. doi: 10.1016/j.jpeds.2018.08.061. Epub 2018 Sep 27. J Pediatr. 2019. PMID: 30270167 Free PMC article. Clinical Trial.
Lessons learned in the use of clinical registry data in a multi-centre prospective study: the Pediatric Heart Network Residual Lesion Score Study.
Prospero CJ, Trachtenberg FL, Pemberton VL, Pasquali SK, Anderson BR, Ash KE, Bainton J, Dunbar-Masterson C, Graham EM, Hamstra MS, Hollenbeck-Pringle D, Jacobs JP, Jacobs ML, John R, Lambert LM, Oster ME, Swan E, Waldron A, Nathan M; Pediatric Heart Network Investigators. Prospero CJ, et al. Among authors: hollenbeck pringle d. Cardiol Young. 2019 Jul;29(7):930-938. doi: 10.1017/S1047951119001148. Epub 2019 Jun 17. Cardiol Young. 2019. PMID: 31204627 Free PMC article.
Longitudinal study of anthropometry in Fontan survivors: Pediatric Heart Network Fontan study.
Lambert LM, McCrindle BW, Pemberton VL, Hollenbeck-Pringle D, Atz AM, Ravishankar C, Campbell MJ, Dunbar-Masterson C, Uzark K, Rolland M, Trachtenberg FL, Menon SC; Pediatric Heart Network Investigators. Lambert LM, et al. Among authors: hollenbeck pringle d. Am Heart J. 2020 Jun;224:192-200. doi: 10.1016/j.ahj.2020.03.022. Epub 2020 Apr 4. Am Heart J. 2020. PMID: 32428726 Free PMC article.
Utilisation of early intervention services in young children with hypoplastic left heart syndrome.
Mussatto KA, Hollenbeck-Pringle D, Trachtenberg F, Sood E, Sananes R, Pike NA, Lambert LM, Mahle WT, Goldberg DJ, Goldberg CS, Dunbar-Masterson C, Otto M, Marino BS, Bartle BH, Williams IA, Jacobs JP, Zyblewski SC, Pemberton VL. Mussatto KA, et al. Cardiol Young. 2018 Jan;28(1):126-133. doi: 10.1017/S104795111700169X. Epub 2017 Aug 29. Cardiol Young. 2018. PMID: 28847329 Free PMC article.
Family Function, Quality of Life, and Well-Being in Parents of Infants With Hypoplastic Left Heart Syndrome.
Mussatto KA, Van Rompay MI, Trachtenberg FL, Pemberton V, Young-Borkowski L, Uzark K, Hollenbeck-Pringle D, Dunbar-Masterson C, Infinger P, Walter P, Sawin K. Mussatto KA, et al. Among authors: hollenbeck pringle d. J Fam Nurs. 2021 Aug;27(3):222-234. doi: 10.1177/1074840720987309. Epub 2021 Feb 4. J Fam Nurs. 2021. PMID: 33535863 Free PMC article.
Registry-based trials: a potential model for cost savings?
Anderson BR, Gotlieb EG, Hill K, McHugh KE, Scheurer MA, Mery CM, Pelletier GJ, Kaltman JR, White OJ, Trachtenberg FL, Hollenbeck-Pringle D, McCrindle BW, Sylvester DM, Eckhauser AW, Pasquali SK, Anderson JB, Schamberger MS, Shashidharan S, Jacobs JP, Jacobs ML, Boskovski M, Newburger JW, Nathan M; Pediatric Heart Network. Anderson BR, et al. Among authors: hollenbeck pringle d. Cardiol Young. 2020 Jun;30(6):807-817. doi: 10.1017/S1047951120001018. Epub 2020 May 8. Cardiol Young. 2020. PMID: 32605679 Free PMC article.
Completeness and Accuracy of Local Clinical Registry Data for Children Undergoing Heart Surgery.
Nathan M, Jacobs ML, Gaynor JW, Newburger JW, Dunbar Masterson C, Lambert LM, Hollenbeck-Pringle D, Trachtenberg FL, White O, Anderson BR, Bell MC, Burch PT, Graham EM, Kaltman JR, Kanter KR, Mery CM, Pizarro C, Schamberger MS, Taylor MD, Jacobs JP, Pasquali SK; Pediatric Heart Network Investigators. Nathan M, et al. Ann Thorac Surg. 2017 Feb;103(2):629-636. doi: 10.1016/j.athoracsur.2016.06.111. Epub 2016 Oct 7. Ann Thorac Surg. 2017. PMID: 27726857 Free PMC article.
Transplant-Free Survival and Interventions at 6 Years in the SVR Trial.
Newburger JW, Sleeper LA, Gaynor JW, Hollenbeck-Pringle D, Frommelt PC, Li JS, Mahle WT, Williams IA, Atz AM, Burns KM, Chen S, Cnota J, Dunbar-Masterson C, Ghanayem NS, Goldberg CS, Jacobs JP, Lewis AB, Mital S, Pizarro C, Eckhauser A, Stark P, Ohye RG; Pediatric Heart Network Investigators. Newburger JW, et al. Among authors: hollenbeck pringle d. Circulation. 2018 May 22;137(21):2246-2253. doi: 10.1161/CIRCULATIONAHA.117.029375. Epub 2018 Feb 1. Circulation. 2018. PMID: 29437119 Free PMC article. Clinical Trial.
Reproducibility of Left Ventricular Dimension Versus Area Versus Volume Measurements in Pediatric Patients With Dilated Cardiomyopathy.
Selamet Tierney ES, Hollenbeck-Pringle D, Lee CK, Altmann K, Dunbar-Masterson C, Golding F, Lu M, Miller SG, Molina K, Natarajan S, Taylor CL, Trachtenberg F, Colan SD; Pediatric Heart Network Investigators. Selamet Tierney ES, et al. Circ Cardiovasc Imaging. 2017 Nov;10(11):e006007. doi: 10.1161/CIRCIMAGING.116.006007. Circ Cardiovasc Imaging. 2017. PMID: 29133477 Free PMC article.
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