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Incorporating the Patient Voice in Sarcoma Research: How Can We Assess Health-Related Quality of Life in This Heterogeneous Group of Patients? A Study Protocol.
den Hollander D, Fiore M, Martin-Broto J, Kasper B, Casado Herraez A, Kulis D, Nixon I, Sodergren SC, Eichler M, van Houdt WJ, Desar IME, Ray-Coquard I, Piccinin C, Kosela-Paterczyk H, Miah A, Hentschel L, Singer S, Wilson R, van der Graaf WTA, Husson O. den Hollander D, et al. Among authors: kulis d. Cancers (Basel). 2020 Dec 22;13(1):1. doi: 10.3390/cancers13010001. Cancers (Basel). 2020. PMID: 33561018 Free PMC article.
Quality-of-Life Priorities in Patients with Thyroid Cancer: A Multinational European Organisation for Research and Treatment of Cancer Phase I Study.
Singer S, Husson O, Tomaszewska IM, Locati LD, Kiyota N, Scheidemann-Wesp U, Hofmeister D, Winterbotham M, Brannan C, Araújo C, Gamper EM, Kulis D, Rimmele H, Andry G, Licitra L. Singer S, et al. Among authors: kulis d. Thyroid. 2016 Nov;26(11):1605-1613. doi: 10.1089/thy.2015.0640. Epub 2016 Oct 12. Thyroid. 2016. PMID: 27605136
Current state of quality of life and patient-reported outcomes research.
Bottomley A, Reijneveld JC, Koller M, Flechtner H, Tomaszewski KA, Greimel E; 5th EORTC Quality of Life in Cancer Clinical Trials Conference Faculty. Bottomley A, et al. Eur J Cancer. 2019 Nov;121:55-63. doi: 10.1016/j.ejca.2019.08.016. Epub 2019 Sep 24. Eur J Cancer. 2019. PMID: 31561134 Free article.
Health-related quality of life issues, including symptoms, in patients with active COVID-19 or post COVID-19; a systematic literature review.
Amdal CD, Pe M, Falk RS, Piccinin C, Bottomley A, Arraras JI, Darlington AS, Hofsø K, Holzner B, Jørgensen NMH, Kulis D, Rimehaug SA, Singer S, Taylor K, Wheelwright S, Bjordal K. Amdal CD, et al. Among authors: kulis d. Qual Life Res. 2021 Dec;30(12):3367-3381. doi: 10.1007/s11136-021-02908-z. Epub 2021 Jun 19. Qual Life Res. 2021. PMID: 34146226 Free PMC article. Review.
Health-related quality of life in patients with COVID-19; international development of a patient-reported outcome measure.
Amdal CD, Taylor K, Kuliś D, Falk RS, Bottomley A, Arraras JI, Barte JH, Darlington AS, Hofsø K, Holzner B, Jørgensen NMH, Mariano MP, Pe M, Piccinin C, Riccetti N, Schranz M, Wheelwright S, Bjordal K. Amdal CD, et al. Among authors: kulis d. J Patient Rep Outcomes. 2022 Mar 26;6(1):26. doi: 10.1186/s41687-022-00434-1. J Patient Rep Outcomes. 2022. PMID: 35348945 Free PMC article.
A multicenter international prospective study of the validity and reliability of a COVID-19-specific health-related quality of life questionnaire.
Amdal CD, Falk RS, Singer S, Pe M, Piccinin C, Bottomley A, Appiah LT, Arraras JI, Bayer O, Buanes EA, Darlington AS, Arbanas GD, Hofsø K, Holzner B, Sahlstrand-Johnson P, Kuliś D, Parmar G, Rmeileh NMEA, Schranz M, Sodergren S, Bjordal K. Amdal CD, et al. Among authors: kulis d. Qual Life Res. 2023 Feb;32(2):447-459. doi: 10.1007/s11136-022-03272-2. Epub 2022 Oct 23. Qual Life Res. 2023. PMID: 36273365 Free PMC article.
Recommendations on the use of item libraries for patient-reported outcome measurement in oncology trials: findings from an international, multidisciplinary working group.
Piccinin C, Basch E, Bhatnagar V, Calvert M, Campbell A, Cella D, Cleeland CS, Coens C, Darlington AS, Dueck AC, Groenvold M, Herold R, King-Kallimanis BL, Kluetz PG, Kuliś D, O'Connor D, Oliver K, Pe M, Reeve BB, Reijneveld JC, Wang XS, Bottomley A. Piccinin C, et al. Among authors: kulis d. Lancet Oncol. 2023 Feb;24(2):e86-e95. doi: 10.1016/S1470-2045(22)00654-4. Lancet Oncol. 2023. PMID: 36725153 Review.
International Phase IV Field Study for the Reliability and Validity of the European Organisation for Research and Treatment of Cancer Thyroid Cancer Module EORTC QLQ-THY34.
Singer S, Al-Ibraheem A, Pinto M, Iakovou I, Østhus AA, Hammerlid E, Locati LD, Gamper E, Ignacio J, Jordan SJ, Kiyota N, Buettner M, Engesser D, Canotilho R, Ioannidis G, Husson O, Gama RR, Fanetti G, Moss L, Inhestern J, Andry G, Fuehrer D, Kuliś D, Rimmele H, Sykiotis G. Singer S, et al. Among authors: kulis d. Thyroid. 2023 Sep;33(9):1078-1089. doi: 10.1089/thy.2023.0221. Epub 2023 Aug 9. Thyroid. 2023. PMID: 37450344
58 results