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803 results

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Page 1
Effects of a multi-faceted education and support programme on anxiety symptoms among people with systemic sclerosis and anxiety during COVID-19 (SPIN-CHAT): a two-arm parallel, partially nested, randomised, controlled trial.
Thombs BD, Kwakkenbos L, Levis B, Bourgeault A, Henry RS, Levis AW, Harb S, Tao L, Carrier ME, Bustamante L, Duchek D, Dyas L, El-Baalbaki G, Ellis K, Rice DB, Wurz A, Nordlund J, Gagarine M, Turner KA, Østbø N, Culos-Reed N, Hebblethwaite S, Patten S, Bartlett SJ, Varga J, Mouthon L, Markham S, Martin MS, Benedetti A; SPIN-CHAT Patient Advisory Team and Program Facilitators; Scleroderma Patient-centered Intervention Network Investigators. Thombs BD, et al. Among authors: mouthon l. Lancet Rheumatol. 2021 Jun;3(6):e427-e437. doi: 10.1016/S2665-9913(21)00060-6. Epub 2021 Apr 16. Lancet Rheumatol. 2021. PMID: 33899008 Free PMC article.
New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).
Thombs BD, Jewett LR, Assassi S, Baron M, Bartlett SJ, Maia AC, El-Baalbaki G, Furst DE, Gottesman K, Haythornthwaite JA, Hudson M, Impens A, Korner A, Leite C, Mayes MD, Malcarne VL, Motivala SJ, Mouthon L, Nielson WR, Plante D, Poiraudeau S, Poole JL, Pope J, Sauve M, Steele RJ, Suarez-Almazor ME, Taillefer S, van den Ende CH, Arthurs E, Bassel M, Delisle V, Milette K, Leavens A, Razykov I, Khanna D. Thombs BD, et al. Among authors: mouthon l. Clin Exp Rheumatol. 2012 Mar-Apr;30(2 Suppl 71):S23-9. Epub 2012 May 29. Clin Exp Rheumatol. 2012. PMID: 22244687 Free PMC article.
The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.
Kwakkenbos L, Jewett LR, Baron M, Bartlett SJ, Furst D, Gottesman K, Khanna D, Malcarne VL, Mayes MD, Mouthon L, Poiraudeau S, Sauve M, Nielson WR, Poole JL, Assassi S, Boutron I, Ells C, van den Ende CH, Hudson M, Impens A, Körner A, Leite C, Costa Maia A, Mendelson C, Pope J, Steele RJ, Suarez-Almazor ME, Ahmed S, Coronado-Montoya S, Delisle VC, Gholizadeh S, Jang Y, Levis B, Milette K, Mills SD, Razykov I, Fox RS, Thombs BD. Kwakkenbos L, et al. Among authors: mouthon l. BMJ Open. 2013 Aug 7;3(8):e003563. doi: 10.1136/bmjopen-2013-003563. BMJ Open. 2013. PMID: 23929922 Free PMC article.
Validation of the Self-Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Riehm KE, Kwakkenbos L, Carrier ME, Bartlett SJ, Malcarne VL, Mouthon L, Nielson WR, Poiraudeau S, Nielsen K, Baron M, Frech T, Hudson M, Pope J, Sauve M, Suarez-Almazor ME, Wigley FM, Thombs BD; Scleroderma Patient-Centered Intervention Network Investigators. Riehm KE, et al. Among authors: mouthon l. Arthritis Care Res (Hoboken). 2016 Aug;68(8):1195-200. doi: 10.1002/acr.22807. Arthritis Care Res (Hoboken). 2016. PMID: 26619042 Free article.
Using Optimal Test Assembly Methods for Shortening Patient-Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale-6: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Levis AW, Harel D, Kwakkenbos L, Carrier ME, Mouthon L, Poiraudeau S, Bartlett SJ, Khanna D, Malcarne VL, Sauve M, van den Ende CH, Poole JL, Schouffoer AA, Welling J, Thombs BD; the Scleroderma Patient-Centered Intervention Network Investigators. Levis AW, et al. Among authors: mouthon l. Arthritis Care Res (Hoboken). 2016 Nov;68(11):1704-1713. doi: 10.1002/acr.22893. Epub 2016 Oct 9. Arthritis Care Res (Hoboken). 2016. PMID: 27015290 Free article.
Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.
Kwakkenbos L, Thombs BD, Khanna D, Carrier ME, Baron M, Furst DE, Gottesman K, van den Hoogen F, Malcarne VL, Mayes MD, Mouthon L, Nielson WR, Poiraudeau S, Riggs R, Sauvé M, Wigley F, Hudson M, Bartlett SJ; SPIN Investigators. Kwakkenbos L, et al. Among authors: mouthon l. Rheumatology (Oxford). 2017 Aug 1;56(8):1302-1311. doi: 10.1093/rheumatology/kex055. Rheumatology (Oxford). 2017. PMID: 28431140 Free PMC article.
Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.
Azar M, Rice DB, Kwakkenbos L, Carrier ME, Shrier I, Bartlett SJ, Hudson M, Mouthon L, Poiraudeau S, van den Ende CHM, Johnson SR, Rodriguez Reyna TS, Schouffoer AA, Welling J, Thombs BD; SPIN investigators. Azar M, et al. Among authors: mouthon l. Disabil Rehabil. 2018 Aug;40(17):1997-2003. doi: 10.1080/09638288.2017.1323023. Epub 2017 May 8. Disabil Rehabil. 2018. PMID: 28478701
The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts.
Dougherty DH, Kwakkenbos L, Carrier ME, Salazar G, Assassi S, Baron M, Bartlett SJ, Furst DE, Gottesman K, van den Hoogen F, Malcarne VL, Mouthon L, Nielson WR, Poiraudeau S, Sauvé M, Boire G, Bruns A, Chung L, Denton C, Dunne JV, Fortin P, Frech T, Gill A, Gordon J, Herrick AL, Hinchcliff M, Hudson M, Johnson SR, Jones N, Kafaja S, Larché M, Manning J, Pope J, Spiera R, Steen V, Sutton E, Thorne C, Wilcox P, Thombs BD, Mayes MD; SPIN Investigators. Dougherty DH, et al. Among authors: mouthon l. Rheumatology (Oxford). 2018 Sep 1;57(9):1623-1631. doi: 10.1093/rheumatology/key139. Rheumatology (Oxford). 2018. PMID: 29868924 Clinical Trial.
The association of sociodemographic and disease variables with hand function: a Scleroderma Patient-centered Intervention Network cohort study.
Kwakkenbos L, Sanchez TA, Turner KA, Mouthon L, Carrier ME, Hudson M, van den Ende CHM, Schouffoer AA, Welling JJKC, Sauvé M, Thombs BD; the SPIN Investigators. Kwakkenbos L, et al. Among authors: mouthon l. Clin Exp Rheumatol. 2018 Jul-Aug;36 Suppl 113(4):88-94. Epub 2018 Sep 29. Clin Exp Rheumatol. 2018. PMID: 30277865 Free article.
803 results