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Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease.
Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P; APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD). Van Bulck L, et al. Among authors: johansson b. Int J Cardiol. 2022 Sep 15;363:30-39. doi: 10.1016/j.ijcard.2022.06.064. Epub 2022 Jun 30. Int J Cardiol. 2022. PMID: 35780933 Free article.
Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors.
Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Moons P, et al. Among authors: johansson b. Int J Cardiol. 2018 Jan 15;251:34-41. doi: 10.1016/j.ijcard.2017.10.064. Epub 2017 Oct 21. Int J Cardiol. 2018. PMID: 29107358 Clinical Trial.
Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective.
Fogleman ND, Apers S, Moons P, Morrison S, Wittekind SG, Tomlin M, Gosney K, Sluman MA, Johansson B, Enomoto J, Dellborg M, Lu CW, Subramanyan R, Luyckx K, Budts W, Jackson J, Kovacs A, Soufi A, Eriksen K, Thomet C, Berghammer M, Callus E, Fernandes SM, Caruana M, Cook SC, Mackie AS, White KS, Khairy P, Kutty S, Veldtman G; APPROACH-IS consortium. Fogleman ND, et al. Among authors: johansson b. Am Heart J. 2017 Nov;193:55-62. doi: 10.1016/j.ahj.2017.07.019. Epub 2017 Aug 2. Am Heart J. 2017. PMID: 29129255 Clinical Trial.
Exercise self-efficacy in adults with congenital heart disease.
Bay A, Sandberg C, Thilén U, Wadell K, Johansson B. Bay A, et al. Among authors: johansson b. Int J Cardiol Heart Vasc. 2018 Jan 12;18:7-11. doi: 10.1016/j.ijcha.2017.12.002. eCollection 2018 Mar. Int J Cardiol Heart Vasc. 2018. PMID: 29349286 Free PMC article.
A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation.
Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Holbein CE, et al. Among authors: johansson b. Congenit Heart Dis. 2018 May;13(3):392-400. doi: 10.1111/chd.12583. Epub 2018 Jan 3. Congenit Heart Dis. 2018. PMID: 29457362 Free PMC article.
Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe.
Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S; APPROACH-IS Consortium; International Society for Adult Congenital Heart Disease (ISACHD). Moons P, et al. Among authors: johansson b. Int J Cardiol. 2019 Jan 1;274:93-99. doi: 10.1016/j.ijcard.2018.07.103. Epub 2018 Jul 23. Int J Cardiol. 2019. PMID: 30077534
2,603 results