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Overview of patients' cohorts in the French National rare disease registry.
Pichon T, Messiaen C, Soussand L, Angin C, Sandrin A, Elarouci N, Jannot AS; BNDMR infrastructure team. Pichon T, et al. Among authors: messiaen c. Orphanet J Rare Dis. 2023 Jul 3;18(1):176. doi: 10.1186/s13023-023-02725-2. Orphanet J Rare Dis. 2023. PMID: 37400917 Free PMC article.
10 years of CEMARA database in the AnDDI-Rares network: a unique resource facilitating research and epidemiology in developmental disorders in France.
Messiaen C, Racine C, Khatim A, Soussand L, Odent S, Lacombe D, Manouvrier S, Edery P, Sigaudy S, Geneviève D, Thauvin-Robinet C, Pasquier L, Petit F, Rossi M, Willems M, Attié-Bitach T, Roux-Levy PH, Demougeot L, Slama LB, Landais P; AnDDI-Rares network; Jannot AS, Binquet C, Sandrin A, Verloes A, Faivre L. Messiaen C, et al. Orphanet J Rare Dis. 2021 Aug 4;16(1):345. doi: 10.1186/s13023-021-01957-4. Orphanet J Rare Dis. 2021. PMID: 34348744 Free PMC article.
Age at diagnosis in patients with chronic congenital endocrine conditions: a regional cohort study from a reference center for rare diseases.
Kallali W, Messiaen C, Saïdi R, Lessim S, Viaud M, Dulon J, Nedelcu M, Samara D, Houang M, Donadille B, Courtillot C, de Filippo G, Carel JC, Christin-Maitre S, Touraine P, Netchine I, Polak M, Léger J. Kallali W, et al. Among authors: messiaen c. Orphanet J Rare Dis. 2021 Nov 4;16(1):469. doi: 10.1186/s13023-021-02099-3. Orphanet J Rare Dis. 2021. PMID: 34736502 Free PMC article.
Federating patients identities: the case of rare diseases.
Maaroufi M, Landais P, Messiaen C, Jaulent MC, Choquet R. Maaroufi M, et al. Among authors: messiaen c. Orphanet J Rare Dis. 2018 Nov 12;13(1):199. doi: 10.1186/s13023-018-0948-6. Orphanet J Rare Dis. 2018. PMID: 30419918 Free PMC article.
18 results