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Core outcome measurement set for research and clinical practice in post-COVID-19 condition (long COVID) in children and young people: an international Delphi consensus study "PC-COS Children".
Seylanova N, Chernyavskaya A, Degtyareva N, Mursalova A, Ajam A, Xiao L, Aktulaeva K, Roshchin P, Bobkova P, Aiyegbusi OL, Anbu AT, Apfelbacher C, Asadi-Pooya AA, Ashkenazi-Hoffnung L, Brackel C, Buonsenso D, de Groote W, Diaz JV, Dona D, Dunn Galvin A, Genuneit J, Goss H, Hughes SE, Jones CJ, Kuppalli K, Malone LA, McFarland S, Needham DM, Nekliudov N, Nicholson TR, Oliveira CR, Schiess N, Segal TY, Sigfrid L, Thorne C, Vijverberg S, Warner JO, Were WM, Williamson PR, Munblit D; PC-COS Children Study Group. Seylanova N, et al. Among authors: hughes se. Eur Respir J. 2024 Mar 14;63(3):2301761. doi: 10.1183/13993003.01761-2023. Print 2024 Mar. Eur Respir J. 2024. PMID: 38359962 Free PMC article. Review.
Core outcome measurement instruments for use in clinical and research settings for adults with post-COVID-19 condition: an international Delphi consensus study.
Gorst SL, Seylanova N, Dodd SR, Harman NL, O'Hara M, Terwee CB, Williamson PR, Needham DM, Munblit D, Nicholson TR; PC-COS study group. Gorst SL, et al. Lancet Respir Med. 2023 Dec;11(12):1101-1114. doi: 10.1016/S2213-2600(23)00370-3. Epub 2023 Nov 2. Lancet Respir Med. 2023. PMID: 37926103 Review.
Patient and public involvement within epidemiological studies of long COVID in the UK.
Routen A, O'Mahoney L, Aiyegbusi OL, Alder Y, Banerjee A, Buckland L, Brightling C, Calvert M, Camaradou J, Chaturvedi N, Chong A, Dalrymple E, Eggo RM, Elliott P, Evans RA, Gibson A, Haroon S, Herrett E, Houchen-Wolloff L, Hughes SE, Jeyes F, Matthews K, McMullan C, Morley J, Shafran R, Smith N, Stanton D, Stephenson T, Sterne J, Turner GM, Ward H, Khunti K. Routen A, et al. Among authors: hughes se. Nat Med. 2023 Apr;29(4):771-773. doi: 10.1038/s41591-023-02251-5. Nat Med. 2023. PMID: 36932242 No abstract available.
Development of consensus-driven SPIRIT and CONSORT extensions for early phase dose-finding trials: the DEFINE study.
Solovyeva O, Dimairo M, Weir CJ, Hee SW, Espinasse A, Ursino M, Patel D, Kightley A, Hughes S, Jaki T, Mander A, Evans TRJ, Lee S, Hopewell S, Rantell KR, Chan AW, Bedding A, Stephens R, Richards D, Roberts L, Kirkpatrick J, de Bono J, Yap C. Solovyeva O, et al. BMC Med. 2023 Jul 5;21(1):246. doi: 10.1186/s12916-023-02937-0. BMC Med. 2023. PMID: 37408015 Free PMC article. Review.
Implementation of patient and public involvement and engagement (PPIE) for the therapies for long COVID in non-hospitalised individuals (TLC) project.
Aiyegbusi OL, McMullan C, Hughes SE, Turner GM, Haroon S, Hotham R, Brown K, Alder Y, Agyen L, Buckland L, Camaradou J, Chong A, Jeyes F, Matthews KL, Moore P, Ormerod J, Price G, Saint-Cricq M, Stanton D, Walker A, Calvert MJ. Aiyegbusi OL, et al. Among authors: hughes se. Res Involv Engagem. 2024 Nov 9;10(1):120. doi: 10.1186/s40900-024-00654-3. Res Involv Engagem. 2024. PMID: 39516880 Free PMC article.
Recommendations to promote equity, diversity and inclusion in decentralized clinical trials.
Aiyegbusi OL, Cruz Rivera S, Kamudoni P, Anderson N, Collis P, Denniston AK, Harding R, Hughes SE, Khunti K, Kotecha D, Krumholz H, Liu X, McMullan C, Molony-Oates B, Monteiro J, Myles P, Rantell KR, Soltys K, Verdi R, Wilson R, Calvert MJ. Aiyegbusi OL, et al. Among authors: hughes se. Nat Med. 2024 Nov;30(11):3075-3084. doi: 10.1038/s41591-024-03323-w. Epub 2024 Oct 29. Nat Med. 2024. PMID: 39472759 Review.
Development of a conceptual framework for an electronic patient-reported outcome (ePRO) system measuring symptoms and impacts of CAR T-cell therapies in patients with haematological malignancies.
Khatsuria F, McMullan C, Aiyegbusi OL, Shaw KL, Iqbal R, Kinsella F, Wilson K, Pyatt L, Lewis M, Wheldon SMR, Burns D, Chakraverty R, Calvert M, Hughes SE. Khatsuria F, et al. Among authors: hughes se. Lancet Oncol. 2024 Oct;25(10):e476-e488. doi: 10.1016/S1470-2045(24)00256-0. Lancet Oncol. 2024. PMID: 39362259 Review.
Key considerations for digital decentralised clinical trials from a feasibility study assessing pacing interventions for long COVID.
McMullan C, Haroon S, Turner G, Aiyegbusi OL, Subramanian A, Hughes SE, Flanagan S, Nirantharakumar K, Davies EH, Frost C, Jackson L, Guan N, Alder Y, Chong A, Buckland L, Jeyes F, Stanton D, Calvert M. McMullan C, et al. Among authors: hughes se. Sci Rep. 2024 Sep 27;14(1):22083. doi: 10.1038/s41598-024-61827-4. Sci Rep. 2024. PMID: 39333196 Free PMC article.
136 results