Edwards A - Search Results

1

Linking Angelman and dup15q data for expanded research (LADDER) database: a model for advancing research, clinical guidance, and therapeutic development for rare conditions.

Potter SN, Reynolds E, Okoniewski KC, Edwards A, Gable J, Hill C, Bakalov V, Zentz S, Whiting C, Cheves E, Garbarini K, Jalazo E, Howell C, Moore A, Wheeler A. Potter SN, et al. Among authors: edwards a. Ther Adv Rare Dis. 2024 May 27;5:26330040241254122. doi: 10.1177/26330040241254122. eCollection 2024 Jan-Dec. Ther Adv Rare Dis. 2024. PMID: 38808315 Free PMC article. Review.

2

Pilot protocol for the Parent and Infant Inter(X)action Intervention (PIXI) feasibility study.

Wheeler AC, Okoniewski KC, Scott S, Edwards A, Cheves E, Turner-Brown L. Wheeler AC, et al. Among authors: edwards a. PLoS One. 2023 May 4;18(5):e0270169. doi: 10.1371/journal.pone.0270169. eCollection 2023. PLoS One. 2023. PMID: 37141305 Free PMC article.

3

Research Gaps in Fragile X Syndrome: An Updated Literature Review to Inform Clinical and Public Health Practice.

Raspa M, Wheeler A, Okoniewski KC, Edwards A, Scott S. Raspa M, et al. Among authors: edwards a. J Dev Behav Pediatr. 2023 Jan 1;44(1):e56-e65. doi: 10.1097/DBP.0000000000001134. Epub 2022 Oct 11. J Dev Behav Pediatr. 2023. PMID: 36219479 Free PMC article. Review.

4

Mindfulness and Acceptance as Potential Protective Factors for Mothers of Children With Fragile X Syndrome.

Wheeler AC, Miller S, Wylie A, Edwards A. Wheeler AC, et al. Among authors: edwards a. Front Public Health. 2018 Nov 6;6:316. doi: 10.3389/fpubh.2018.00316. eCollection 2018. Front Public Health. 2018. PMID: 30460222 Free PMC article.

5

Family Communication and Cascade Testing for Fragile X Syndrome.

Raspa M, Edwards A, Wheeler AC, Bishop E, Bailey DB Jr. Raspa M, et al. Among authors: edwards a. J Genet Couns. 2016 Oct;25(5):1075-84. doi: 10.1007/s10897-016-9940-2. Epub 2016 Mar 9. J Genet Couns. 2016. PMID: 26961978

6

Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review.

Raspa M, Moultrie R, Wagner L, Edwards A, Andrews S, Frisch MK, Turner-Brown L, Wheeler A. Raspa M, et al. Among authors: edwards a. J Med Internet Res. 2020 May 21;22(5):e16734. doi: 10.2196/16734. J Med Internet Res. 2020. PMID: 32436848 Free PMC article. Review.

7

Health and reproductive experiences of women with an FMR1 premutation with and without fragile X premature ovarian insufficiency.

Wheeler AC, Raspa M, Green A, Bishop E, Bann C, Edwards A, Bailey DB Jr. Wheeler AC, et al. Among authors: edwards a. Front Genet. 2014 Sep 8;5:300. doi: 10.3389/fgene.2014.00300. eCollection 2014. Front Genet. 2014. PMID: 25250044 Free PMC article.

8

Parent ratings of ability to consent for clinical trials in fragile X syndrome.

Bailey DB Jr, Raspa M, Wheeler A, Edwards A, Bishop E, Bann C, Borasky D, Appelbaum PS. Bailey DB Jr, et al. Among authors: edwards a. J Empir Res Hum Res Ethics. 2014 Jul;9(3):18-28. doi: 10.1177/1556264614540591. J Empir Res Hum Res Ethics. 2014. PMID: 25422596 Free PMC article.

9

"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record.

Andrews SM, Raspa M, Edwards A, Moultrie R, Turner-Brown L, Wagner L, Alvarez Rivas A, Frisch MK, Wheeler AC. Andrews SM, et al. Among authors: edwards a. J Am Med Inform Assoc. 2020 Mar 1;27(3):429-436. doi: 10.1093/jamia/ocz208. J Am Med Inform Assoc. 2020. PMID: 31913479 Free PMC article.

10

Decisional Capacity for Informed Consent in Males and Females with Fragile X Syndrome.

Wheeler AC, Wylie A, Raspa M, Villagomez A, Miller K, Edwards A, DeRamus M, Appelbaum PS, Bailey DB Jr. Wheeler AC, et al. Among authors: edwards a. J Autism Dev Disord. 2020 May;50(5):1725-1747. doi: 10.1007/s10803-019-03930-4. J Autism Dev Disord. 2020. PMID: 30825084 Free PMC article.

Save citations to file

Email citations

Send citations to clipboard

Add to Collections

Add to My Bibliography

Create a file for external citation management software

Your saved search

Your RSS Feed

My Custom Filters

Publication date

Text availability

Article attribute

Article type

Article Language

Species

Sex

Age

Other

4,403 results

Search Page

Filters