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Page 1
Association of support group leader experience with Scleroderma Patient-centered Intervention Network Support group Leader EDucation Program outcomes: Secondary analysis of a two-arm parallel partially nested randomized controlled trial.
Thombs BD, Levis B, Carrier ME, Dyas L, Konrad V, Sauvé M, Benedetti A; SPIN-SSLED Support Group Advisory Team. Thombs BD, et al. Among authors: sauve m. J Scleroderma Relat Disord. 2024 Sep 4:23971983241272742. doi: 10.1177/23971983241272742. Online ahead of print. J Scleroderma Relat Disord. 2024. PMID: 39552943 Free PMC article.
Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study.
Adams C, Nassar EL, Carrier ME, Kwakkenbos L, Henry RS, Virgili-Gervais G, Hu S, Bartlett SJ, Fortuné C, Gietzen A, Gottesman K, Guillot G, Hudson M, Lawrie-Jones A, Lewis N, Malcarne V, Mayes MD, Patten SB, Richard M, Sauvé M, Varga J, Welling J, Wojeck R, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Adams C, et al. Among authors: sauve m. J Scleroderma Relat Disord. 2024 Oct;9(3):242-247. doi: 10.1177/23971983241262655. Epub 2024 Aug 5. J Scleroderma Relat Disord. 2024. PMID: 39381050
The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study.
Virgili-Gervais G, Matthews B, Nassar EL, Carrier ME, Kwakkenbos L, Pauling JD, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Lawrie-Jones A, Malcarne VL, Mayes MD, Richard M, Sauvé M, Wojeck RK, Mouthon L, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network investigators. Virgili-Gervais G, et al. Among authors: sauve m. Lancet Rheumatol. 2024 Oct;6(10):e684-e692. doi: 10.1016/S2665-9913(24)00189-9. Epub 2024 Aug 28. Lancet Rheumatol. 2024. PMID: 39216493
Gravity- vs Wall Suction-Driven Large-Volume Thoracentesis: A Randomized Controlled Study.
Shojaee S, Pannu J, Yarmus L, Fantin A, MacRosty C, Bassett R Jr, Debiane L, DePew ZS, Faiz SA, Jimenez CA, Avasarala SK, Vakil E, DeMaio A, Bashoura L, Keshava K, Ferguson T, Adachi R, Eapen GA, Ost DE, Bashour S, Khan A, Shannon V, Sheshadri A, Casal RF, Evans SE, Pew K, Castaldo N, Balachandran DD, Patruno V, Lentz R, Pai C, Maldonado F, Roller L, Ma J, Zaveri J, Los J, Vaquero L, Ordonez E, Yermakhanova G, Akulian J, Burks C, Almario RR, Sauve M, Pettee J, Noor LZ, Arain MH, Grosu HB. Shojaee S, et al. Among authors: sauve m. Chest. 2024 Dec;166(6):1573-1582. doi: 10.1016/j.chest.2024.05.046. Epub 2024 Jul 18. Chest. 2024. PMID: 39029784 Clinical Trial.
Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership.
Dal Santo T, Golberg M, Nassar EL, Carrier ME, Hu S, Kwakkenbos L, Bartlett SJ, Fox RS, Lee YC, Varga J, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network Pain Patient Advisory Team. Dal Santo T, et al. BMC Rheumatol. 2024 Jun 21;8(1):28. doi: 10.1186/s41927-024-00398-3. BMC Rheumatol. 2024. PMID: 38907303 Free PMC article.
The association of resilience and positive mental health in systemic sclerosis: A Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study.
Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Virgili-Gervais G, Wojeck RK, Wurz A, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Benedetti A, Thombs BD; SPIN Investigators. Neyer MA, et al. Among authors: sauve m. J Psychosom Res. 2024 Apr;179:111648. doi: 10.1016/j.jpsychores.2024.111648. Epub 2024 Mar 11. J Psychosom Res. 2024. PMID: 38507968 Free article.
Factors associated with physical function among people with systemic sclerosis: a SPIN cohort cross-sectional study.
Dal Santo T, Rice DB, Carrier ME, Virgili-Gervais G, Levis B, Kwakkenbos L, Golberg M, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Malcarne VL, Mayes MD, Mouthon L, Richard M, Sauvé M, Wojeck RK, Geoffroy MC, Benedetti A, Thombs BD; SPIN Investigators. Dal Santo T, et al. Among authors: sauve m. Rheumatology (Oxford). 2024 Oct 1;63(10):2660-2669. doi: 10.1093/rheumatology/keae162. Rheumatology (Oxford). 2024. PMID: 38471107
Factors associated with satisfaction with social roles and activities among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study.
Dal Santo T, Rice D, Carrier ME, Virgili-Gervais G, Levis B, Kwakkenbos L, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Malcarne V, Mayes M, Mouthon L, Richard M, Sauve M, Wojeck R, Geoffroy MC, Benedetti A, Thombs B; SPIN investigators. Dal Santo T, et al. Among authors: sauve m. RMD Open. 2024 Feb 29;10(1):e003876. doi: 10.1136/rmdopen-2023-003876. RMD Open. 2024. PMID: 38428973 Free PMC article.
Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews.
Wurz A, Ellis K, Nordlund J, Carrier ME, Cook V, Gietzen A, Adams C, Nassar EL, Rice DB, Fortune C, Guillot G, Mieszczak T, Richard M, Sauve M, Thombs BD. Wurz A, et al. Among authors: sauve m. Res Involv Engagem. 2024 Jan 27;10(1):13. doi: 10.1186/s40900-024-00546-6. Res Involv Engagem. 2024. PMID: 38281049 Free PMC article.
124 results