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Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study.
Adams C, Nassar EL, Carrier ME, Kwakkenbos L, Henry RS, Virgili-Gervais G, Hu S, Bartlett SJ, Fortuné C, Gietzen A, Gottesman K, Guillot G, Hudson M, Lawrie-Jones A, Lewis N, Malcarne V, Mayes MD, Patten SB, Richard M, Sauvé M, Varga J, Welling J, Wojeck R, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Adams C, et al. Among authors: henry rs. J Scleroderma Relat Disord. 2024 Oct;9(3):242-247. doi: 10.1177/23971983241262655. Epub 2024 Aug 5. J Scleroderma Relat Disord. 2024. PMID: 39381050
Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients.
Thombs BD, Kwakkenbos L, Carrier ME, Bourgeault A, Tao L, Harb S, Gagarine M, Rice D, Bustamante L, Ellis K, Duchek D, Wu Y, Bhandari PM, Neupane D, Carboni-Jiménez A, Henry RS, Krishnan A, Sun Y, Levis B, He C, Turner KA, Benedetti A, Culos-Reed N, El-Baalbaki G, Hebblethwaite S, Bartlett SJ, Dyas L, Patten S, Varga J; Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Patient Advisory Team; SPIN Investigators. Thombs BD, et al. Among authors: henry rs. J Psychosom Res. 2020 Aug;135:110132. doi: 10.1016/j.jpsychores.2020.110132. Epub 2020 May 14. J Psychosom Res. 2020. PMID: 32521358 Free PMC article. Clinical Trial.
Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study.
Thombs BD, Kwakkenbos L, Henry RS, Carrier ME, Patten S, Harb S, Bourgeault A, Tao L, Bartlett SJ, Mouthon L, Varga J, Benedetti A; SPIN Patient Advisors; SPIN Investigators. Thombs BD, et al. Among authors: henry rs. J Psychosom Res. 2020 Dec;139:110262. doi: 10.1016/j.jpsychores.2020.110262. Epub 2020 Oct 3. J Psychosom Res. 2020. PMID: 33070043 Free PMC article.
Validation of the COVID-19 Fears Questionnaires for Chronic Medical Conditions: A Scleroderma Patient-centered Intervention Network COVID-19 Cohort study.
Wu Y, Kwakkenbos L, Henry RS, Tao L, Harb S, Bourgeault A, Carrier ME, Levis B, Sun Y, Bhandari PM, Carboni-Jiménez A, Gagarine M, He C, Krishnan A, Negeri ZF, Neupane D, Mouthon L, Bartlett SJ, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Investigators; SPIN COVID-19 Patient Advisory Team. Wu Y, et al. Among authors: henry rs. J Psychosom Res. 2020 Dec;139:110271. doi: 10.1016/j.jpsychores.2020.110271. Epub 2020 Oct 8. J Psychosom Res. 2020. PMID: 33096402 Free PMC article.
Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study.
Wu Y, Kwakkenbos L, Henry RS, Carrier ME, Gagarine M, Harb S, Bourgeault A, Tao L, Carboni-Jiménez A, Negeri Z, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN Patient Advisors; SPIN Investigators. Wu Y, et al. Among authors: henry rs. J Psychosom Res. 2021 Jan;140:110314. doi: 10.1016/j.jpsychores.2020.110314. Epub 2020 Nov 25. J Psychosom Res. 2021. PMID: 33271402 Free PMC article.
Effects of a multi-faceted education and support programme on anxiety symptoms among people with systemic sclerosis and anxiety during COVID-19 (SPIN-CHAT): a two-arm parallel, partially nested, randomised, controlled trial.
Thombs BD, Kwakkenbos L, Levis B, Bourgeault A, Henry RS, Levis AW, Harb S, Tao L, Carrier ME, Bustamante L, Duchek D, Dyas L, El-Baalbaki G, Ellis K, Rice DB, Wurz A, Nordlund J, Gagarine M, Turner KA, Østbø N, Culos-Reed N, Hebblethwaite S, Patten S, Bartlett SJ, Varga J, Mouthon L, Markham S, Martin MS, Benedetti A; SPIN-CHAT Patient Advisory Team and Program Facilitators; Scleroderma Patient-centered Intervention Network Investigators. Thombs BD, et al. Among authors: henry rs. Lancet Rheumatol. 2021 Jun;3(6):e427-e437. doi: 10.1016/S2665-9913(21)00060-6. Epub 2021 Apr 16. Lancet Rheumatol. 2021. PMID: 33899008 Free PMC article.
Effects of non-pharmacological and non-surgical interventions on health outcomes in systemic sclerosis: protocol for a living systematic review.
Discepola MN, Carboni-Jiménez A, Kwakkenbos L, Henry RS, Boruff J, Krishnan A, Boström C, Culos-Reed SN, Hudson M, Leader DM, Mattsson M, Mouthon L, Wojeck R, Yakes Jimenez E, Sauve M, Welling J, Guillot G, Benedetti A, Thombs BD. Discepola MN, et al. Among authors: henry rs. BMJ Open. 2021 May 4;11(5):e047428. doi: 10.1136/bmjopen-2020-047428. BMJ Open. 2021. PMID: 33947738 Free PMC article.
The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial.
Nordlund J, Henry RS, Kwakkenbos L, Carrier ME, Levis B, Nielson WR, Bartlett SJ, Dyas L, Tao L, Fedoruk C, Nielsen K, Hudson M, Pope J, Frech T, Gholizadeh S, Johnson SR, Piotrowski P, Jewett LR, Gordon J, Chung L, Bilsker D, Levis AW, Turner KA, Cumin J, Welling J, Fortuné C, Leite C, Gottesman K, Sauve M, Rodríguez-Reyna TS, Larche M, van Breda W, Suarez-Almazor ME, Wurz A, Culos-Reed N, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Nordlund J, et al. Among authors: henry rs. Trials. 2021 Nov 27;22(1):856. doi: 10.1186/s13063-021-05827-z. Trials. 2021. PMID: 34838105 Free PMC article.
Mental health before and during the pandemic in people with systemic sclerosis.
Henry RS, Kwakkenbos L, Carrier ME, Negeri Z, Bourgeault A, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN COVID-19 Patient Advisory Team; SPIN investigators. Henry RS, et al. Lancet Rheumatol. 2022 Feb;4(2):e82-e85. doi: 10.1016/S2665-9913(21)00363-5. Epub 2021 Dec 3. Lancet Rheumatol. 2022. PMID: 34901884 Free PMC article. No abstract available.
Systemic sclerosis and COVID-19 vaccines: a SPIN Cohort study.
Gordon JK, Showalter K, Wu Y, Kwakkenbos L, Carrier ME, Henry RS, Østbø N, Nordlund J, Bourgeault A, Cañedo-Ayala M, Carboni-Jiménez A, Denton CP, Mouthon L, Thombs BD, Spiera RF; SPIN COVID-19 Patient Advisory Team on behalf of the SPIN Investigators. Gordon JK, et al. Among authors: henry rs. Lancet Rheumatol. 2022 Apr;4(4):e243-e246. doi: 10.1016/S2665-9913(21)00416-1. Epub 2022 Jan 18. Lancet Rheumatol. 2022. PMID: 35072109 Free PMC article. No abstract available.
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