Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation

Search Page

Filters

My Custom Filters

Publication date

Text availability

Article attribute

Article type

Additional filters

Article Language

Species

Sex

Age

Other

Search Results

263 results

Filters applied: . Clear all
Results are displayed in a computed author sort order. The Publication Date timeline is not available.
Page 1
The Feasibility of Personalized Endpoints in Assessing Treatment Outcomes in Rare Disease: A Pilot Study of Goal Attainment Scaling in SCN2A-Associated Developmental Epileptic Encephalopathy.
Sevinc G, Knox K, George M, Evans L, Kaiser A, Paltell KC, Myers LS, Ludwig NN, Wojnaroski M, Conecker G, Hecker J, Downs J, Chapman CA, Berg AT. Sevinc G, et al. Among authors: berg at. Value Health. 2024 Dec 27:S1098-3015(24)06795-0. doi: 10.1016/j.jval.2024.12.004. Online ahead of print. Value Health. 2024. PMID: 39733836 Free article.
Patient-advocate-led global coalition adapting fit-for-purpose outcomes measures to assure meaningful inclusion of DEEs in clinical trials.
Hecker J, Conecker G, Chapman C, Hommer R, Ludwig NN, Sevinc G, Te S, Wojnaroski M, Downs J, Berg AT. Hecker J, et al. Among authors: berg at. Ther Adv Rare Dis. 2024 Jun 22;18:26330040241249762. doi: 10.1177/26330040241249762. eCollection 2024 Jan-Dec. Ther Adv Rare Dis. 2024. PMID: 38911512 Free PMC article. Review.
Novel approaches to measuring cognition in individuals with severe to profound functional impairment: A pilot study in SCN2A-related disorder.
Ludwig NN, Wojnaroski M, Suskauer SJ, Slomine BS, Kaiser A, Paltell K, Evans L, Tucker K, Chapman CAT, Conecker G, Hecker J, Myers LS, Downs J, Berg AT. Ludwig NN, et al. Among authors: berg at. Epilepsy Behav. 2024 Nov;160:109975. doi: 10.1016/j.yebeh.2024.109975. Epub 2024 Sep 20. Epilepsy Behav. 2024. PMID: 39305725
Incidence of Dravet Syndrome in a US Population.
Krueger J, Berg AT. Krueger J, et al. Among authors: berg at. Pediatr Neurol Briefs. 2015 Dec;29(12):92. doi: 10.15844/pedneurbriefs-29-12-3. Pediatr Neurol Briefs. 2015. PMID: 26933548 Free PMC article.
Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Infants, Children, and Adolescents with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations.
Mitchell JW, Sossi F, Miller I, Jaber PB, Das-Gupta Z, Fialho LS, Amos A, Austin JK, Badzik S, Baker G, Ben Zeev B, Bolton J, Chaplin JE, Cross JH, Chan D, Gericke CA, Husain AM, Lally L, Mbugua S, Megan C, Mesa T, Nuñez L, von Oertzen TJ, Perucca E, Pullen A, Ronen GM, Sajatovic M, Singh MB, Wilmshurst JM, Wollscheid L, Berg AT. Mitchell JW, et al. Among authors: berg at. Epilepsia. 2024 Jul;65(7):1938-1961. doi: 10.1111/epi.17976. Epub 2024 May 17. Epilepsia. 2024. PMID: 38758635
Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations.
Mitchell JW, Sossi F, Miller I, Jaber PB, Das-Gupta Z, Fialho LS, Amos A, Austin JK, Badzik S, Baker G, Zeev BB, Bolton J, Chaplin JE, Cross JH, Chan D, Gericke CA, Husain AM, Lally L, Mbugua S, Megan C, Mesa T, Nuñez L, von Oertzen TJ, Perucca E, Pullen A, Ronen GM, Sajatovic M, Singh MB, Wilmshurst JM, Wollscheid L, Berg AT. Mitchell JW, et al. Among authors: berg at. Epilepsia. 2024 Jul;65(7):1916-1937. doi: 10.1111/epi.17971. Epub 2024 May 13. Epilepsia. 2024. PMID: 38738754 Review.
263 results