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The Feasibility of Personalized Endpoints in Assessing Treatment Outcomes in Rare Disease: A Pilot Study of Goal Attainment Scaling in SCN2A-Associated Developmental Epileptic Encephalopathy.
Sevinc G, Knox K, George M, Evans L, Kaiser A, Paltell KC, Myers LS, Ludwig NN, Wojnaroski M, Conecker G, Hecker J, Downs J, Chapman CA, Berg AT. Sevinc G, et al. Among authors: ludwig nn. Value Health. 2024 Dec 27:S1098-3015(24)06795-0. doi: 10.1016/j.jval.2024.12.004. Online ahead of print. Value Health. 2024. PMID: 39733836
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy.
Downs J, Ludwig NN, Wojnaroski M, Keeley J, Schust Myers L, Chapman CAT, Hecker J, Conecker G, Berg AT. Downs J, et al. Among authors: ludwig nn. Qual Life Res. 2024 Feb;33(2):519-528. doi: 10.1007/s11136-023-03543-6. Epub 2023 Dec 8. Qual Life Res. 2024. PMID: 38064015 Free PMC article.
Patient-advocate-led global coalition adapting fit-for-purpose outcomes measures to assure meaningful inclusion of DEEs in clinical trials.
Hecker J, Conecker G, Chapman C, Hommer R, Ludwig NN, Sevinc G, Te S, Wojnaroski M, Downs J, Berg AT. Hecker J, et al. Among authors: ludwig nn. Ther Adv Rare Dis. 2024 Jun 22;18:26330040241249762. doi: 10.1177/26330040241249762. eCollection 2024 Jan-Dec. Ther Adv Rare Dis. 2024. PMID: 38911512 Free PMC article. Review.
Tumor region associated with specific processing speed outcomes.
Peterson RK, Ng R, Ludwig NN, Jacobson LA. Peterson RK, et al. Among authors: ludwig nn. Pediatr Blood Cancer. 2023 Mar;70(3):e30167. doi: 10.1002/pbc.30167. Epub 2023 Jan 10. Pediatr Blood Cancer. 2023. PMID: 36625401 Free PMC article.
Outcome Measurement in Children With a History of Disorders of Consciousness After Severe Brain Injury: Telephone Administration of the Vineland Adaptive Behavior Scales, Third Edition, and Glasgow Outcome Scale-Extended Pediatric Revision.
Ludwig NN, Suskauer SJ, Rodgin S, Chen J, Borda A, Jones K, Lahey S, Slomine BS. Ludwig NN, et al. Pediatr Crit Care Med. 2023 Feb 1;24(2):e76-e83. doi: 10.1097/PCC.0000000000003121. Epub 2022 Dec 16. Pediatr Crit Care Med. 2023. PMID: 36661427
34 results