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"A torch, a rope, a belly laugh": engaging with the multiple voices of support groups for people living with rare dementia.
Front Dement. 2025 Jan 8;3:1488025. doi: 10.3389/frdem.2024.1488025. eCollection 2024.
Front Dement. 2025.
PMID: 39845648
Free PMC article.
The experience of "at-risk" status for familial frontotemporal dementia (fFTD) and its impact on reproductive decision-making: A qualitative study.
Fahy N, Hayes OS, Greaves CV, Goldsmith SE, Brotherhood EV, Rohrer JD, Harding E, Stott J.
Fahy N, et al. Among authors: hayes os.
J Genet Couns. 2025 Feb;34(1):e2000. doi: 10.1002/jgc4.2000.
J Genet Couns. 2025.
PMID: 39801084
Free PMC article.
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How Do Care Partners of People with Rare Dementia Use Language in Online Peer Support Groups? A Quantitative Text Analysis Study.
Hayes OS, El Baou C, Hardy CJD, Camic PM, Brotherhood EV, Harding E, Crutch SJ; Rare Dementia Support (RDS) Research Team.
Hayes OS, et al.
Healthcare (Basel). 2024 Jan 25;12(3):313. doi: 10.3390/healthcare12030313.
Healthcare (Basel). 2024.
PMID: 38338197
Free PMC article.
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