Patient affect and caregiver burden in dementia

Psychogeriatrics. 2020 Mar;20(2):189-195. doi: 10.1111/psyg.12487. Epub 2019 Nov 7.

Abstract

Background: Numerous studies focusing on the burden of caregivers of dementia patients have been published. However, there have been few studies focusing on positive affect as an important factor affecting the caregiver burden, and only a few studies comparing the caregiver burden between different dementia diseases have been reported.

Methods: Three hundred and thirty-seven consecutive caregivers of people with dementia participated in this study. The caregiver burden was evaluated by the short version of the Japanese version of the Zarit Burden Interview.

Results: Positive affect scores had a significant relationship with the scores of the short version of the Zarit Burden Interview. Caregivers for patients with dementia with Lewy bodies or frontotemporal dementia suffered from a greater burden than those for patients with Alzheimer's disease dementia.

Conclusions: The caregiver burden differed between people caring for patients with different dementia diseases. Positive affect of dementia patients has a significant relationship with caregiver burden, independently from neuropsychiatric symptoms of patients.

Keywords: Alzheimer's disease; care; dementia; dementia with Lewy bodies; frontotemporal dementia; positive affect.

MeSH terms

  • Adaptation, Psychological
  • Adult
  • Affect*
  • Aged
  • Aged, 80 and over
  • Alzheimer Disease / psychology
  • Caregivers / psychology*
  • Cost of Illness*
  • Cross-Sectional Studies
  • Dementia / psychology*
  • Female
  • Frontotemporal Dementia / psychology
  • Humans
  • Japan
  • Lewy Body Disease / psychology
  • Male
  • Mental Status and Dementia Tests
  • Middle Aged
  • Retrospective Studies
  • Severity of Illness Index