A self-report instrument that describes urogenital atrophy symptoms in breast cancer survivors

West J Nurs Res. 2012 Feb;34(1):72-96. doi: 10.1177/0193945910391483. Epub 2010 Dec 20.

Abstract

Urogenital atrophy affects the lower urinary and genital tracts and is responsible for urinary, genital, and sexual symptoms. The accurate identification, measurement, and documentation of symptoms are limited by the absence of reliable and valid instruments. The Urogenital Atrophy Questionnaire was developed to allow self-reporting of symptoms and to provide clinicians and researchers an instrument to identify, measure, and document indicators of urogenital atrophy. A pilot study (n = 30) measured test-retest reliability (p < .05) of the instrument. Subsequently, a survey of women with (n = 168) and without breast cancer (n = 166) was conducted using the Urogenital Atrophy Questionnaire, Female Sexual Function Instrument, and Functional Assessment of Cancer Therapy, Breast, Endocrine Scale. Exploratory factor analysis (KMO 0.774; Bartlett's test of sphericity 0.000) indicated moderate-high relatedness of items. Concurrent (p > .01) and divergent validity (p < .000) were established. A questionnaire resulted that enables women, regardless of sexual orientation, partner status, and levels of sexual activity to accurately report symptoms.

Publication types

  • Clinical Trial
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't
  • Validation Study

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Atrophic Vaginitis / complications
  • Atrophic Vaginitis / diagnosis*
  • Atrophic Vaginitis / nursing
  • Breast Neoplasms / complications*
  • Breast Neoplasms / nursing
  • Female
  • Health Surveys / methods
  • Health Surveys / standards*
  • Humans
  • Middle Aged
  • Self Report / standards*
  • Sexuality
  • Survivors
  • Urinary Incontinence / complications
  • Urinary Incontinence / diagnosis*
  • Urinary Incontinence / nursing
  • Young Adult