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A Psychometric Evaluation of the Motor-Behavioral Assessment Scale for Use as an Outcome Measure in Rett Syndrome Clinical Trials.
Raspa M, Bann CM, Gwaltney A, Benke TA, Fu C, Glaze DG, Haas R, Heydemann P, Jones M, Kaufmann WE, Lieberman D, Marsh E, Peters S, Ryther R, Standridge S, Skinner SA, Percy AK, Neul JL. Raspa M, et al. Am J Intellect Dev Disabil. 2020 Nov 1;125(6):493-509. doi: 10.1352/1944-7558-125.6.493. Am J Intellect Dev Disabil. 2020. PMID: 33211820 Free PMC article.
Top Caregiver Concerns in Rett syndrome and related disorders: data from the US Natural History Study.
Neul JL, Benke TA, Marsh ED, Suter B, Silveira L, Fu C, Peters SU, Percy AK; Rett syndrome Natural History Study Group. Neul JL, et al. Res Sq [Preprint]. 2023 Mar 20:rs.3.rs-2566253. doi: 10.21203/rs.3.rs-2566253/v1. Res Sq. 2023. Update in: J Neurodev Disord. 2023 Oct 13;15(1):33. doi: 10.1186/s11689-023-09502-z PMID: 36993737 Free PMC article. Updated. Preprint.