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Including the initial newborn screening bloodspot collection device serial number on birth certificates: basis and recommendations from the Secretary of Health and Human Services' Advisory Committee on Heritable Disorders in Newborns and Children.
Therrell BL, Wu C; Secretary of Health and Human Services Advisory Committee on Heritable Disorders in Newborns and Children; SACHDNC Subcommittee on Long Term Follow-up and Treatment. Therrell BL, et al. Genet Med. 2013 Mar;15(3):229-33. doi: 10.1038/gim.2012.121. Epub 2012 Oct 4. Genet Med. 2013. PMID: 23037933 Free article.
Secretary's Advisory Committee on Heritable Disorders in Newborns and Children response to the President's Council on Bioethics report: the changing moral focus of newborn screening.
Trotter TL, Fleischman AR, Howell RR, Lloyd-Puryear M; Secretary's Advisory Committee on Heritable Disorders in Newborns and Children. Trotter TL, et al. Genet Med. 2011 Apr;13(4):301-4. doi: 10.1097/GIM.0b013e318210655d. Genet Med. 2011. PMID: 21407080 Free article. No abstract available.
A framework for assessing outcomes from newborn screening: on the road to measuring its promise.
Hinton CF, Homer CJ, Thompson AA, Williams A, Hassell KL, Feuchtbaum L, Berry SA, Comeau AM, Therrell BL, Brower A, Harris KB, Brown C, Monaco J, Ostrander RJ, Zuckerman AE, Kaye C, Dougherty D, Greene C, Green NS; Follow-up and Treatment Sub-committee of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC). Hinton CF, et al. Mol Genet Metab. 2016 Aug;118(4):221-9. doi: 10.1016/j.ymgme.2016.05.017. Epub 2016 May 31. Mol Genet Metab. 2016. PMID: 27268406 Free PMC article.