Patients with implantable cardioverter-defibrillators and their conceptions of the life situation: a qualitative analysis

J Clin Nurs. 2000 Jan;9(1):37-45. doi: 10.1046/j.1365-2702.2000.00335.x.

Abstract

The implantable cardioverter-defibrillator (ICD) is today widely used for the treatment of sudden cardiac near-death episodes as a result of malignant ventricular dysrhythmia. After examining the literature, only four descriptive studies, all carried out in the USA, with a qualitative analysis based on ICD-patients' own perspectives on their life situation have been found. The aim of this study was to describe how patients living with an ICD-device in south-western Sweden conceive their life situation. As the focus was on patients' conceptions seen from a holistic perspective, an analysis inspired by phenomenography was employed on a strategic sample of 15 ICD-patients. Six categories emerged: a feeling of safety, a feeling of gratitude, a feeling of being, having a network, having a belief in the future, and gaining awareness. Although the findings cannot be generalized because of the descriptive research design, they illuminate the beneficial as well as intrusive effects of such a device, and emphasize the need for support groups for patients and families as well as further education for personnel in hospital and primary health care.

MeSH terms

  • Adaptation, Psychological
  • Adult
  • Aged
  • Arrhythmias, Cardiac / psychology*
  • Arrhythmias, Cardiac / therapy*
  • Defibrillators, Implantable / psychology*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Nursing Methodology Research
  • Patient Satisfaction*
  • Quality of Life*
  • Research Design
  • Surveys and Questionnaires
  • Sweden