How do AD patients and their caregivers decide whether to enroll in a clinical trial?

Neurology. 2001 Mar 27;56(6):789-92. doi: 10.1212/wnl.56.6.789.

Abstract

To examine how patients and caregivers decide whether to enroll in a clinical trial, the authors conducted semi-structured interviews with 22 family caregivers of patients with mild to moderate AD who were recruited for a clinical trial. They found that a caregiver who enrolls a patient in research generally involves the patient in the decision-making process, reports that the patient shares in the decision, and regards the risks and benefits to the patient and to the caregiver as interdependent.

Publication types

  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Alzheimer Disease / psychology*
  • Caregivers / psychology*
  • Clinical Trials as Topic*
  • Data Collection
  • Decision Making*