Abstract
Looks at some of the issues raised by patients' involvment in the research process. Uses the example of a service users' advisory group established as part of a diabetes service evaluation in the north of England. Key conclusions were: a precise role for the group should be specified at the outset; genuine user involvement is needed; wide and accurate representation of all relevant groups in society is essential; and, researchers must approach users with open minds with a view to shared decision making rather than control.
Publication types
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Research Support, Non-U.S. Gov't
MeSH terms
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Asia, Southeastern / ethnology
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Clinical Protocols*
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Community Health Services / organization & administration
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Community Participation*
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Consumer Behavior
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Diabetes Mellitus, Type 2 / epidemiology
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Diabetes Mellitus, Type 2 / prevention & control*
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England
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Female
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Health Services Research / organization & administration*
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Humans
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Interviews as Topic
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Longitudinal Studies
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Male
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Needs Assessment
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Patient Selection*
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Primary Health Care / organization & administration*
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Public Policy