HIV surveillance in theory and practice: assessing the acceptability of California's non-name HIV surveillance regulations

Health Policy. 2006 Aug 22;78(1):101-10. doi: 10.1016/j.healthpol.2005.09.006. Epub 2005 Oct 26.

Abstract

In 2002, California adopted a non-name system for HIV case reporting. This study focused on the acceptability of a non-name reporting system among key stakeholders implementing the system. We conducted qualitative research during the pre- and post-implementation period of the non-name HIV reporting regulations. During both study periods we conducted key informant in-depth interviews (n = 48 and 52, respectively) with health department surveillance staff, laboratory personnel, health care providers and clinic staff; and we conducted four focus group discussions (n = 28 and 30, respectively) with representatives of community-planning group members and advocacy groups. We found that overall, California's non-name HIV reporting regulations were acceptable to most key stakeholders. Acceptability of a non-name system was highest among advocates and healthcare providers. Views of health department staff varied across the four counties, with some expressing a strong preference of a names based system and others accepting the non-name system.

MeSH terms

  • California / epidemiology
  • Confidentiality*
  • Focus Groups
  • HIV Infections / epidemiology*
  • Health Personnel / psychology*
  • Humans
  • Interviews as Topic
  • Population Surveillance / methods*