Depression and suicidal ideation after predictive testing for Huntington's disease: a two-year follow-up study

J Genet Couns. 2006 Oct;15(5):361-74. doi: 10.1007/s10897-006-9027-6.

Abstract

The present study reports a two-year follow-up of psychological effects of predictive testing for Huntington's disease. Questionnaires assessing depression, general health, well-being, self injurious behavior, life satisfaction, and lifestyle were completed by 35 carriers and 58 non-carriers before the predictive test, and 2, 6, 12, and 24 months afterwards. Both carriers and non-carriers showed high suicidal ideation before the predictive testing. Depression scores and frequency of suicidal thoughts increased for carriers, compared to non-carriers, over time. There were no differences regarding life satisfaction or life style between carriers and non-carriers. Predictive testing was beneficial in reducing overall ill-health symptoms and increasing well-being for those initially expressing concern about Huntington's disease. The importance of assessing suicidal ideation and of continuing to provide adequate support is emphasized.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Depression / psychology*
  • Follow-Up Studies
  • Genetic Testing / psychology*
  • Humans
  • Life Style
  • Patient Satisfaction
  • Suicide / psychology*