Abstract
This paper identifies family characteristics associated with use of autism-related services. A telephone or in-person survey was completed during 2003-2005 by 383 North Carolina families with a child 11 years old or younger with ASD. Access to care is limited for racial and ethnic minority families, with low parental education, living in nonmetropolitan areas, and not following a major treatment approach. Service use is more likely when parents have higher stress. Families use a broad array of services; the mix varies with child ASD diagnosis and age group. Disparities in service use associated with race, residence and education point to the need to develop policy, practice and family-level interventions that can address barriers to services for children with ASD.
Publication types
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Research Support, N.I.H., Extramural
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Research Support, U.S. Gov't, P.H.S.
MeSH terms
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Asperger Syndrome / epidemiology*
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Asperger Syndrome / rehabilitation
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Autistic Disorder / epidemiology*
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Autistic Disorder / rehabilitation
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Child
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Child Development Disorders, Pervasive / epidemiology*
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Child Development Disorders, Pervasive / rehabilitation
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Child, Preschool
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Community Health Services / statistics & numerical data*
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Ethnicity / statistics & numerical data
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Female
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Health Care Surveys / statistics & numerical data
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Health Services Accessibility / statistics & numerical data*
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Health Services Needs and Demand / statistics & numerical data
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Health Services Research / statistics & numerical data
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Healthcare Disparities / statistics & numerical data*
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Humans
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Intellectual Disability / epidemiology
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Intellectual Disability / rehabilitation
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Male
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North Carolina
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Socioeconomic Factors
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Urban Population / statistics & numerical data
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Utilization Review / statistics & numerical data