What are patients' priorities for palliative care research? Focus group study

Palliat Med. 2007 Apr;21(3):219-25. doi: 10.1177/0269216307077353.

Abstract

To elucidate the research priorities of palliative care patients we conducted focus groups with day therapy and hospice in-patients with cancer with an estimated prognosis of 6 months or less. Patients were positive about taking part in this research project identifying five main priorities for future research--talking with patients; help for patients and families; oncology; symptoms; medication/treatments. Patients gave great emphasis to communication issues and little to symptom control. A patient questionnaire was created with these themes which is currently being used in five hospices across East Anglia. This paper describes the qualitative component of the study.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Attitude
  • Communication
  • Focus Groups
  • Hospice Care / methods*
  • Humans
  • Neoplasms / psychology
  • Neoplasms / therapy
  • Palliative Care / methods*
  • Patient Participation*
  • Physician-Patient Relations
  • Research Design