Refractory celiac disease

Curr Gastroenterol Rep. 2007 Oct;9(5):401-5. doi: 10.1007/s11894-007-0049-5.

Abstract

Celiac disease (CD) is a small intestinal inflammatory disorder characterized by an immune-mediated enteropathy triggered by the ingestion of wheat gluten or related rye and barley proteins in genetically predisposed individuals carrying the human leukocyte antigens (HLA)-DQ2 or -DQ8. Nonresponsive CD (NRCD) is a clinical diagnosis defined by the persistence of signs, symptoms, and/or laboratory abnormalities typical of CD despite adherence to a gluten-free diet for at least 6 months. One cause for NRCD is refractory CD (RCD), defined as the persistence of severe villous atrophy on small intestinal biopsy despite strict gluten withdrawal for at least 6 months with no evidence of other pathology. Although rare, RCD should be suspected in individuals with an established diagnosis of CD who fail to respond primarily or secondarily to a strict gluten-free diet, particularly if they manifest significant weight loss. A thorough evaluation must be performed to distinguish RCD from other causes of NRCD. RCD may be categorized into type I or type II. Type I RCD has a more favorable prognosis compared with type II and can often be managed with nutritional supplementation and possibly low level immunosuppressive therapy. Type II RCD carries a poor prognosis and is more likely to progress to life-threatening malnutrition or intestinal T-cell lymphoma. Immunosuppressive agents and, more recently, autologous stem cell transplant have been used to treat type II RCD.

Publication types

  • Review

MeSH terms

  • Celiac Disease / complications
  • Celiac Disease / diet therapy*
  • Celiac Disease / drug therapy
  • Celiac Disease / immunology*
  • Female
  • Glutens / immunology
  • Glutens / metabolism*
  • Humans
  • Immunosuppressive Agents / therapeutic use*
  • Intestinal Mucosa / immunology
  • Intestinal Mucosa / pathology
  • Male
  • Prognosis
  • Risk Assessment
  • Severity of Illness Index
  • Treatment Failure

Substances

  • Immunosuppressive Agents
  • Glutens