Identifying and responding to ethical and methodological issues in after-death interviews with next-of-kin

Death Stud. 2008;32(3):197-236. doi: 10.1080/07481180701881297.

Abstract

After-death research with next-of-kin can enhance our understanding of end-of-life care and translate into better services for dying persons and their survivors. This article describes ethical and methodological issues that emerged in a pilot of a face-to-face interview guide designed to elicit next-of-kin's perceptions of end-of-life care. The pilot study was part of a larger Veterans Affairs (VA) Health Services Research protocol to improve end-of-life care in VA Medical Centers. By deconstructing the research process from an ethical perspective and engaging in critical self-assessment, the authors aim to inform other researchers of potential problems involved in after-death research with next-of-kin.

MeSH terms

  • Death*
  • Ethics, Research*
  • Family*
  • Humans
  • Informed Consent
  • Interviews as Topic / methods*
  • Palliative Care
  • Research Design*
  • Research Personnel / ethics*
  • Role
  • Terminal Care
  • Time Factors
  • United States
  • United States Department of Veterans Affairs
  • Veterans