Women with disabilities' experiences in long-term care: a case for social justice

Am J Occup Ther. 2009 Jan-Feb;63(1):35-45. doi: 10.5014/ajot.63.1.35.

Abstract

Objective: The purpose of this study was to explore women with disabilities' perceptions of their lived experiences in nursing homes.

Method: This 16-month ethnography used multiple qualitative methods, including participant observations, thematic qualitative interviews, and focus groups, to examine the perceptions of life in nursing home for 6 women with disabilities who had returned to community living and their significant others (n= 13).

Results: Nursing homes were living situations of last resort for women with disabilities. Life in the nursing home was characterized by lost choice, control, and occupational engagement; social isolation; social control; the political economy of the nursing home; and active resistance.

Discussion: Occupational therapy practitioners practicing from a social justice paradigm have a responsibility to ensure that client goals to live in the least restrictive environments possible are realized. Implications for long-term-care referral practices, advocacy-based interventions, and partnership with the disability community are discussed.

MeSH terms

  • Activities of Daily Living*
  • Adult
  • Anthropology, Cultural
  • Cohort Studies
  • Disabled Persons / rehabilitation*
  • Female
  • Humans
  • Interviews as Topic
  • Long-Term Care
  • Middle Aged
  • Nursing Homes*
  • Social Justice*
  • Women / psychology*