The gains and pains of being a cancer support group leader: a qualitative survey of rewards and challenges

Soc Work Health Care. 2009;48(8):750-67. doi: 10.1080/00981380902929156.

Abstract

Rewards derived from leading a cancer support group are poorly understood yet may be crucial to offset the challenges and difficulties of this role. This study sought to obtain the views of a representative sample of Australian cancer support group leaders (CSGLs) concerning the perceived rewards and challenges of their role. All CSGLs identified by the state-based Cancer Councils were invited to participate by postal questionnaire. Qualitative methods were used to analyze responses to open-ended questions concerning rewards and challenges. A total of 300 CSGLs returned the questionnaire (response rate = 66%) with 272 providing qualitative comments. Four parallel themes emerged from the qualitative analysis: (i) Personal, (ii) Relationship, (iii) Group, and (iv) Community rewards and challenges. These were integrated into a model depicting key positive and negative aspects of the CSGL's role, to provide direction for future training and ongoing support of CSGLs.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Cross-Sectional Studies
  • Female
  • Group Processes
  • Humans
  • Interpersonal Relations
  • Job Satisfaction
  • Leadership*
  • Male
  • Middle Aged
  • Neoplasms*
  • Qualitative Research
  • Self-Help Groups / organization & administration*
  • Socioeconomic Factors