A cross-national comparative study of orphan drug policies in the United States, the European Union, and Japan: towards a made-in-China orphan drug policy

J Public Health Policy. 2010 Dec;31(4):407-20; discussion 420-1. doi: 10.1057/jphp.2010.30.

Abstract

Rare diseases can severely impact patient life quality as well as impose a serious burden on society. But research and development for drugs to treat these disorders has stagnated because of lack of demand, insufficient knowledge of pathophysiological mechanisms, and too few patients for clinical trials. In several countries--the United States, the EU, and Japan--specific legislation has been enacted to encourage pharmaceutical companies to expedite the development of drugs for rare diseases, orphan drugs, and to assure access to them. We analyze the strengths and weaknesses of the incentives in these laws and describe the status of rare diseases in China. We offer some recommendations for orphan drug legislation in China, based on local research on rare diseases.

Publication types

  • Comparative Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • China
  • Drug Approval / economics
  • Drug Approval / legislation & jurisprudence*
  • Drug Industry / economics
  • Drug Industry / legislation & jurisprudence*
  • European Union
  • Global Health
  • Health Policy*
  • Health Services Accessibility
  • Health Services Needs and Demand
  • Humans
  • Internationality*
  • Japan
  • Orphan Drug Production / economics
  • Orphan Drug Production / legislation & jurisprudence*
  • Prescription Drugs / economics
  • Public Health / legislation & jurisprudence
  • Rare Diseases / drug therapy*
  • Rare Diseases / economics
  • United States

Substances

  • Prescription Drugs