Public awareness of Crohn's disease and ulcerative colitis: A national survey

J Crohns Colitis. 2009 Sep;3(3):157-61. doi: 10.1016/j.crohns.2009.01.003. Epub 2009 Feb 26.

Abstract

Background and aims: Crohn's disease (CD) and ulcerative colitis (UC) are lifelong inflammatory bowel diseases (IBD) progressing over time. Lack of public awareness may contribute to tardy consultation of primary care physicians, late diagnosis and development of potentially preventable complications of disease. A public opinion poll has been performed to assess the awareness of CD and UC in the Austrian population.

Methods: In March/April 2006, 122 interviewers of an international polling institute asked 1001 Austrians aged 16 and over about their knowledge of CD and UC. People interviewed were selected using a quota sampling scheme representing the Austrian population.

Results: CD and UC were never heard/read in 68% and 79% (group 1), respectively, whereas 23% and 14% had already heard/read these terms (group 2). Only 9% and 7% of participants gained information on or were familiar with CD and UC (group3), respectively. Among provided choices of potentially afflicted organs interviewees of group 3 associated the terms "CD" and "UC" with an intestinal disease in 86% each. Among those of group 2+3 the corresponding figures were 53% and 60% for CD and UC, respectively. Overall, 7% and 4% of the participants stated to be aware and/or informed on CD and UC and correctly associated these terms with an intestinal disease.

Conclusions: This is the first study on public awareness of the terms "Crohn's disease" and "ulcerative colitis". Poor knowledge in the public is reported which may vastly impact outcome and health economic consequences of IBD.