Typical and atypical dementia family caregivers: systematic and objective comparisons

Int J Aging Hum Dev. 2011;72(1):27-43. doi: 10.2190/AG.72.1.b.

Abstract

This systematic, objective comparison of typical (spouse, children) and atypical (in-law, sibling, nephew/niece, grandchild) dementia family caregivers examined demographic, caregiving and clinical variables. Analysis was of 1476 caregivers, of whom 125 were atypical, from the Resources for Enhancing Alzheimer's Caregivers Health (REACH I and II) studies. Based on statistical and clinical significance, there were large effects for demographics but no large effects among caregivers or care recipients on clinical and caregiving variables. Non-spouse family members were more likely to be caring for women and unmarried individuals. Grandchildren and nieces/nephews provided care for older care recipients. For care recipients who are unmarried, older, or women, fewer care possibilities may be available; consequently family members other than spouse or children may become their caregivers. Once an individual becomes a caregiver, the clinical experience of dementia caregiving is similar across caregiver types. These findings have implications for clinical care and public policy.

Trial registration: ClinicalTrials.gov NCT00177489.

Publication types

  • Comparative Study
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Alzheimer Disease*
  • Caregivers / psychology*
  • Cost of Illness
  • Demography
  • Family Relations*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Retrospective Studies

Associated data

  • ClinicalTrials.gov/NCT00177489