A Kaupapa Māori approach to a community cohort study of heart disease in New Zealand

Aust N Z J Public Health. 2011 Jun;35(3):249-55. doi: 10.1111/j.1753-6405.2011.00702.x.

Abstract

Objective: To report the processes and protocols that were developed in the design and implementation of the Hauora Manawa Project, a cohort study of heart disease in New Zealand and to report the participation at baseline.

Methods: This study utilised application of a Kaupapa Māori Methodology in gaining tribal and health community engagement, design of the project and random selection of participants from territorial electoral rolls, to obtain three cohorts: rural Māori, urban Māori and urban non-Māori. Logistic regression was used to model response rates.

Results: Time invested in gaining tribal and health community engagement assisted in the development and design of clear protocols and processes for the study. Response rates were 57.6%, 48.3% and 57.2%. Co-operation rates (participation among those with whom contact was established) were 74.7%, 66.6% and 71.4%.

Conclusions: Use of electoral rolls enables straightforward sampling but results in low response rates because electors have moved. Co-operation rates highlight the acceptability of this research project to the participants; they indicate the strength of Kaupapa Māori Methodologies in engaging Māori participants and community.

Implications: This study provides a model for conducting clinical/biomedical research projects that are compatible with cultural protocols and methodologies, in which the primary aim of the research was Māori health gain.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Cohort Studies
  • Community Participation
  • Community-Based Participatory Research / methods*
  • Cultural Characteristics
  • Female
  • Health Services Research
  • Health Services, Indigenous / organization & administration*
  • Healthcare Disparities
  • Heart Diseases / ethnology
  • Heart Diseases / prevention & control*
  • Humans
  • Logistic Models
  • Male
  • Middle Aged
  • New Zealand
  • Pilot Projects
  • Primary Health Care / organization & administration*
  • Young Adult